Hello all, I have yet another roller coaster post of the ups and downs as of late.
Today(technically yesterday the 28th) marks the 10nth anniversary of my best friends moms death from stage four breast cancer, which metastasized to her liver, and bones.
My friend invited me over for dinner tonight to be with his family, we had a nice time of remembrance and fellowship. You see, I did not know my friend during the time of his moms illness, so it was a bit shocking and different for me to be there for this time. Honored to say the least.
At the dinner table his second mom mentioned that she's been watching the celebration of life video, which I have never heard mentioned before. So when I got home this evening, I searched for it and found it. Then I searched the internet for the Obit, which I also found. In the Obit I found a link to a blog, written by my friends mom during her treatment. I never knew it existed. As of yet, no one else knows I have found it, I don't know if I was supposed to find it or not seeing as I have never been told about it. Maybe it was just old news and it never crossed my friends mind because it was ten years ago...
Ive read several pages of the blog thus far, learning tons of information I never knew. It is also very encouraging, even though I know how the blog will end... there are all kinds of positives laced in the posts. Positives that I can understand as a sick person, such as getting better results on blood tests-some of which were barely short of a miracle. One that stands out to me was upon diagnoses her blood test for tumor markers was just short of 3,000 points. after weeks of treatment it was down in the low triple digits, and did drop into normal range. Her liver went from a major issue, blood was going in the reverse direction in the main artery-to normal and functional. Completely healed with a minor side of scaring. I think all of us with a chronic illness pray for test improvements as quick and remarkable as this.
You see, over the last week or two I have been sad that I have never met this woman, so I have prayed a few times that I would get some kind of message from her. Nothing specific, this is actually unlike me...Its rather unusual to pray to God for information from someone who has passed. This blog written by his mom seems to be the answer for that, many of her posts hit home for me giving me a picture of what my friends life was like during this time period. They also shed a positive light on being sick, I mean she was told on day 1-go home and get your affairs in order you won't see Christmas. Hows that for bleak? How do you not become depressed from news such as that? You know what? She saw Christmas in good health, and then she saw it once more. Beat that depression.
I just cannot believe some of the things I have read, keep in mind these posts that I have read so far are 12 years old. Yet some things she said I feel almost like they spoke right too me. I wish I could have been there for my friend during this time, so so so badly. I can never change the fact that we weren't together then, but the writings of his mom make me feel like I was there, I feel more so like I knew her than never knowing her at all. Its not the same as being there, but just the fact that this was real, is much less foreign I guess you could say. She went through a lot and was put through a lot, but she held her faith like a rock. She lived a better quality of life than she was told, she lived much longer than she was told, and she had faith that no matter what the outcome was it would be okay. She knew there was a good chance was going to die sooner than the standard life span of a woman, but she made every bit of that time count. It wasn't wasted on feeling sad or the woe is me thoughts, thats the power of a woman who prays.
Now as I have said in the past depression has become one of my biggest enemies as of this year. I have never had to battle it significantly before. But now I battle depression, sadness, and feelings of total worthlessness daily. After my last visit to Kansas these issues have lessened, but this past week has been particularly rough. I have never stopped praying throughout this journey and I never intend too. Today was an answer to prayers, yet more proof I have no reason to stop praying.
There are many aspects about chronic illness that scare me. It is hard to believe I have been sick for almost seven years now. It is also hard to believe that I am just as afraid now as I was years ago, it seems there is almost always something around to give me a new reason to be afraid. Sometimes these reasons don't exist. Rooted in paranoia. Also a new symptom as of this year.
I often thank God for all of the wonderful people placed in my life, not everyone has this luxury. Some of these people are readers and commenters on this blog such as Rebecca Miller. She never fails to post something encouraging for me, until recently I never thought I needed that much encouragement. All of us who have been placed in a situation with chronic disease should be encouraging one another much more often than the current reality.
I would like to ask for some very specific prayer requests.
I would like for you all to pray that I can fully reconnect to reality, everything now feel dull and I feel distant even on a good day, that my depression will be banished-permanently. its hard to fight when you can't find a reason to, that my kidneys will begin to function normally, and that I will be able to eat and have an appetite like a normal teenage boy.
These are my current biggest roadblocks. I am already on a strong supplement protocol that is showing benefit but I honestly feel that these issues are more spiritual than chemical. I can't explain how, it just is what it is. I have full faith that I becoming sick was no accident and that many great things will come from it. But I do fear what my quality of life and residual damage will be like when my fight with disease is over, what will be permanently gone and what will be recovered.
In honor of my friends mom
Because of my depression, I have learned to appreciate the moments in life that are truly and timelessly special. The one of a kind, never to be repeated again moments.
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Sunday, October 29, 2017
Thursday, October 5, 2017
Hansa Round 5 days 1-2
I am going to go ahead and post about my doctors visits from today and yesterday, I know I still haven't posted my 4th visit to the clinic. Ill get to it one day.
Day 1-
Day 1-
OK so on to today's visit, #1 among all things from the doctors testing and my blood work-parasites. So again, we are at it treating those with new things, so far he hasn't said if they were digestive or blood parasites. As far as their effects, they are causing issues in my whole system not just something here or there.
Something unique that muscle testing can find is "attachments" or "entities", that's what he found on me today, negative energy attached to the parasites. The remedy he made for me was to clear the negativity from my system and disconnect the connection it had on me. This surprised me, yet didn't surprise me. I have been so dark and depressed...much more than ever before. After he gave me the remedy I felt happier, for the rest of the day I was able to laugh and have fun even though I felt garbagy still.
I have never had anyone tell me this before. Something interesting, last week I visited my friend who does muscle testing, shes been helping me out some since I have not been able to see my doctor. She couldn't figure out what was wrong with me, we ended up down meaningless rabbit trails, no answers, and I was completely untestable. We tried for two hours to figure out what was up in my system, nothing. We didn't check for attachments though, and thats what the test block was.
He made a new remedy for those today, once again this is a completely new and different treatment than before. In other words we are treating a different aspect of the whole parasitic, its not necessarily anything new as far as infections go. Parasites take a while to get rid of because they are very unique, bacteria and virus are hard but in their own separate aspect. If you have a strong functioning immune system, you wont pickup a virus or bacteria, and if you do they wont be capable of sticking in your system for long.
Lyme disease is a bacteria and it is hard to get rid of because it is capable of disarming and destroying immune cells, infecting the entire body but nonetheless it can be killed.
Here's what makes parasites unique, they are a living breathing multicellular organism just like an animal. They are capable of harboring their own set of bacteria, virus, metals, just like people. Parasites have their own brain, blood system, and digestive system unlike bacteria and virus. So when a person becomes infected with parasites and takes a treatment, the parasites are killed but then they release whatever pathogens or toxins they were carrying. You can take a standard X drug for Y parasite for years, you will never be able to kill every single one of them with a drug and you will have strong side effects from the dying parasites.
In the way I am being treated, the side effects, the parasites, and the communication between my body and the parasites are being addressed.
That's another thing that makes parasites unique, they have to have a host to survive. When they infect a person or an animal, they release chemicals that stop your body from recognizing them so they can fly under the radar. So the communication aspect has to be addressed as well, you will never find a standard doctor or naturopath capable of treating this. It takes a specialized doctor like mine who can do specialized testing to see what the pathogens are doing and what will stop them, there is no set protocol for this. Its mostly homeopathic treatment to disconnect the connection of the parasites to my system, herbs and drugs will mainly just kill. The thing is, you cant just kill parasites, they become resistant and they hide. They can even incase themselves in cysts which can't be killed.
So that was the majority of todays appointment, he made one remedy to cover everything involved with the parasitic ordeal, tomorrow he will test again to see what else needs to be done. My body actually tested at saturation today, which means we covered everything possible for the day-no more. My doctor said that is a pretty big deal because that means this new treatment is powerful enough to negate everything else.
Lyme disease is a bacteria and it is hard to get rid of because it is capable of disarming and destroying immune cells, infecting the entire body but nonetheless it can be killed.
Here's what makes parasites unique, they are a living breathing multicellular organism just like an animal. They are capable of harboring their own set of bacteria, virus, metals, just like people. Parasites have their own brain, blood system, and digestive system unlike bacteria and virus. So when a person becomes infected with parasites and takes a treatment, the parasites are killed but then they release whatever pathogens or toxins they were carrying. You can take a standard X drug for Y parasite for years, you will never be able to kill every single one of them with a drug and you will have strong side effects from the dying parasites.
In the way I am being treated, the side effects, the parasites, and the communication between my body and the parasites are being addressed.
That's another thing that makes parasites unique, they have to have a host to survive. When they infect a person or an animal, they release chemicals that stop your body from recognizing them so they can fly under the radar. So the communication aspect has to be addressed as well, you will never find a standard doctor or naturopath capable of treating this. It takes a specialized doctor like mine who can do specialized testing to see what the pathogens are doing and what will stop them, there is no set protocol for this. Its mostly homeopathic treatment to disconnect the connection of the parasites to my system, herbs and drugs will mainly just kill. The thing is, you cant just kill parasites, they become resistant and they hide. They can even incase themselves in cysts which can't be killed.
So that was the majority of todays appointment, he made one remedy to cover everything involved with the parasitic ordeal, tomorrow he will test again to see what else needs to be done. My body actually tested at saturation today, which means we covered everything possible for the day-no more. My doctor said that is a pretty big deal because that means this new treatment is powerful enough to negate everything else.
He also worked on the hernia, he felt around my stomach and said that my diaphragm was swollen to the point that it was covering my stomach. In a regular hiatal hernia the stomach get stuck in the bottom of the diaphragm, so by pulling the stomach down you correct the hernia. In my case its the reverse, my diaphragm is swollen and veering my stomach. He adjusted it and did some facial release using the percussor, then he used hyssop oil on it to bring down the inflammation. Again he will check it tomorrow, but after all he did today it may finally be a done deal. He told me I need to continue using the hyssop for a while to prevent it from coming back, so that will be something I do once I get home.
As far as blood results go, this round is fairly different than before in how they've changed. For the first time vitamin D is good, cholesterol is closer to where it should be, white blood cell count is higher meaning my immune system is actually beginning to work on its own, but I did hit a new extreme on easonifils which is the parasite marker. He said its rare to see it as high as mine is, so we know for sure that we are chasing the right rabbit trail. My kidneys are showing some stress also, other than those two things I don't have a bad report.
With as bad as I have felt the past couple of months I was expecting worse for my blood scores, and the parasite markers are pretty bad. But that's it, Lyme itself is not showing up so far, that's a big positive. Neither are any other tick borne infections that I have, doesn't mean they aren't there it just means they aren't a problem right now.
Tomorrow ill find out what else we can find to correct, I'm fairly satisfied for today's visit because it was entirely new stuff as far as what's actually happening in my body and new treatment.
Day 2-
Today was another productive visit at the doctors office. We worked on parasites again, this time with focus on the side affects of the parasites themselves. He found that the parasites are disrupting my mitochondria, causing me to be tired all the time. Plus he found some tie ins to my stomach and hormones.
He found I need a dopamine, serotonin, and pregnenolone booster to counteract the side affects. Plus he added something for me to take to support my adrenals during this time. The adrenals are what make a significant portion of your hormones, plus they make energy. By supporting my adrenals in addition to treating the other issues it adds a boost to my body as a whole.
He also added a neuro anti-inflammatory supplement, because the parasite toxins are setting off my brain and nervous system. So this tied with the dopamine and serotonin, this will help with my terrible brain fog.
The pregnenolone is tied into the adrenal pathway, so that is what the purpose of this hormone.
He found I need a dopamine, serotonin, and pregnenolone booster to counteract the side affects. Plus he added something for me to take to support my adrenals during this time. The adrenals are what make a significant portion of your hormones, plus they make energy. By supporting my adrenals in addition to treating the other issues it adds a boost to my body as a whole.
He also added a neuro anti-inflammatory supplement, because the parasite toxins are setting off my brain and nervous system. So this tied with the dopamine and serotonin, this will help with my terrible brain fog.
The pregnenolone is tied into the adrenal pathway, so that is what the purpose of this hormone.
Most of this is new for me, several years ago I did a dopamine booster and it didn't help me much. This is the first time that my body has tested well for any direct neurotransmitter(brain chemical) support, in other words this is a new layer being corrected that we haven't been able to reach.
Pregnenolone is also new for me, I am interested to see how this makes me feel before long.
Pregnenolone is also new for me, I am interested to see how this makes me feel before long.
I feel pretty worn out today, my brain fog is just making everything difficult.
I see the doc again tomorrow, then I will be headed home.
When Time Stops
I am back at the clinic for part of this week and I had a realization today. I was laying on the couch in the hotel room, thinking about all the homework I needed to get done and also how alone I have been feeling.
The TV was going but I was hardly watching it, I was so tired for most of this afternoon that I have been lost in space. Whenever I get like this I tend to just flip through my phone, flipping from one page to another. Opening an app then closing it, until I decide I need to do something better with my time. I realized that time had stopped, minutes felt like hours, I wasn't talking to anyone, TV was just noise, I didn't want to read, I couldn't do anything. I was so tired and foggy I couldn't make myself do any of my normal activities.
On top of that I realized I wasn't talking to anyone because time has not stopped for my friend, they are all either in school or at work. They don"t have the time to talk to me right now, too much life in the way. I haven't heard from my best friend since 6:30am yesterday, he hasn't seen any of my messages about whats going on with me here at the clinic, School and work dictate otherwise. Its sad for me, because he's one of the very few people I feel like I actually connect with, but he isn't sick-his life cant just stop because of me. Same with the rest of my friends and family.
Add that to the list of chronic disease symptoms that others just do not understand, being alone because the disease even infects our time. Our day, Our week, Our year.
I would so much rather have been at work today, joking around with my co workers and working on a new project I have been assigned to overhead. It would be easier to do my homework at home, in my own bed or on my own couch. The hotel room is nice and plenty comfortable, but it ain't home. You cannot beat being at home when you don't feel well. All other environments feel so cold and absent when the world is crashing down around you, only the chronically ill will understand what I just said. Its just not an option right now, I cant be home and honestly I don't feel well enough to be at home. Coming to see my doctor is what I have to do right now.
Today, after a whole morning and afternoon of trying to muster the energy and motivation, I finished reading my history book for class. Next I have to write a paper on it, but lets not think about that right now.
My doctor visits have been going very well, I can see progress in my future. I do have a little bit of peace, but too much brain fog to let me hold onto it.
The TV was going but I was hardly watching it, I was so tired for most of this afternoon that I have been lost in space. Whenever I get like this I tend to just flip through my phone, flipping from one page to another. Opening an app then closing it, until I decide I need to do something better with my time. I realized that time had stopped, minutes felt like hours, I wasn't talking to anyone, TV was just noise, I didn't want to read, I couldn't do anything. I was so tired and foggy I couldn't make myself do any of my normal activities.
On top of that I realized I wasn't talking to anyone because time has not stopped for my friend, they are all either in school or at work. They don"t have the time to talk to me right now, too much life in the way. I haven't heard from my best friend since 6:30am yesterday, he hasn't seen any of my messages about whats going on with me here at the clinic, School and work dictate otherwise. Its sad for me, because he's one of the very few people I feel like I actually connect with, but he isn't sick-his life cant just stop because of me. Same with the rest of my friends and family.
Add that to the list of chronic disease symptoms that others just do not understand, being alone because the disease even infects our time. Our day, Our week, Our year.
I would so much rather have been at work today, joking around with my co workers and working on a new project I have been assigned to overhead. It would be easier to do my homework at home, in my own bed or on my own couch. The hotel room is nice and plenty comfortable, but it ain't home. You cannot beat being at home when you don't feel well. All other environments feel so cold and absent when the world is crashing down around you, only the chronically ill will understand what I just said. Its just not an option right now, I cant be home and honestly I don't feel well enough to be at home. Coming to see my doctor is what I have to do right now.
Today, after a whole morning and afternoon of trying to muster the energy and motivation, I finished reading my history book for class. Next I have to write a paper on it, but lets not think about that right now.
My doctor visits have been going very well, I can see progress in my future. I do have a little bit of peace, but too much brain fog to let me hold onto it.