Well I haven't yet given an update for December. I had a successful trip to my doctor in Kansas. I was doing fairly well actually after leaving the clinic, I was less annoyed all the time and much less symptomatic overall. For a change I was smiling much more often, which I feel has been a rarity for me. It seems there is always something to fry my circuits.
No miracles, but I was feeling better....but then I caught the flu. The good news is I was only sick for 4-5 days which is very short for the flu and I never puked. Last time I had the flu I was sick for two weeks and threw up for those two weeks. Not this time. The bad news is it still just beat my system down, my fever stuck around 103 F and I was incapable of eating much at all. So, I am still recovering from this wonderful event...
I don't seem to catch regular person sicknesses often, outside of a few colds a year. I especially don't catch something and run a high fever, so Im not entirely sure what to think of all this. Maybe I was just do for it this year, the good news is if this was really the flu I should be fairly immune to it for the next seven years or so. Thats one fact people rarely get told, if you contract the flu your immunity is built up for about seven years worth of flu strains. This doesn't hold true for the vaccine. I don't know if its all true, but its been about 10 years since I have had the flu last.
Lately I feel dragged down. My bones hurt, especially my fingers and knees. I have low motivation, honestly if it didn't bore me I would never leave my bed and I would watch tv all day. The bad news for me is I despise sitting around...though I don't have the energy to do much else. So I just wing it.
Also since being sick last week, I keep blowing blood out of my nose. This aint right...I have never been prone to nose bleeds...now its been bleeding for two days straight. My body is so weird.
Its starting to occur to me how long this has been going on, next month will be my seven year anniversary since getting sick. Its mentally draining to think that this is still going on...I can't believe it.
I want to be human again, I want to be happy again. I hate this annoyance towards everything I feel all the time. Things will change one day...but when?
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Saturday, December 30, 2017
December trip to Kansas
This month I had my seventh visit to Wichita to see my doctor for a week. It went well, I think we finally made a couple break throughs. It sure sounded like it during the appointments and we are focusing more so on some issues that have not been addressed with focus before.
This has been a long struggling year... I do not know what happened to me but Ive just broken. I am praying that 2018 will be filled with more smiles and fewer symptoms.
Day 1-
This has been a long struggling year... I do not know what happened to me but Ive just broken. I am praying that 2018 will be filled with more smiles and fewer symptoms.
Day 1-
We went over my blood work, a few good improvements. My iron and ferritin are no longer high. My iron has been 40 points too high on all of the blood work I have had this year, so for it to drop right back to where it should be is great. it had been resting around 201, now its 126.
My parasite markers have also improved, last time they were at 10, this time they are at 4, 0-3 is the goal. This is great, I am just barely out of range for this.
My cholesterol dropped again, still hanging much lower than it should be.
Other than that my blood work is still slowly improving.
My parasite markers have also improved, last time they were at 10, this time they are at 4, 0-3 is the goal. This is great, I am just barely out of range for this.
My cholesterol dropped again, still hanging much lower than it should be.
Other than that my blood work is still slowly improving.
We also went over my hormone panel. This dramatically improved. All of my hormones are about where they should be. Now the only ones off enough to count are my adrenals, in the afternoon they are optimal, but in the morning they are low and at night they are high. This is why I cant fall asleep early or wake up early.
This week we will be working on gut issues and parasites as these have been my most problematic issues.
Today we talked about the methylation cycle, which is the cycle of breaking down nutrients and neutralizing toxins. I have followed a methylation protocol in the past without any notable results. This time its a bit different, he tested to see which chemicals were built up in my system and he tested to see which supplements would clear these out. This current protocol he has me following is a newer program, it is not the traditional methylation protocol that you may have read about before(for those that are familiar). Instead of taking a full shotgun approach and testing all my genes and treating anything possibly defective, we are treating only what is tested as problematic.
He explained to me that in the past he has gotten poor results with the standard methylation protocol, about 80% of his patients had no change and 10% got worse. In this updated version the protocol is more individualized, so it will not overload my system making me sick and it will not miss anything making me sicker.
Today we talked about the methylation cycle, which is the cycle of breaking down nutrients and neutralizing toxins. I have followed a methylation protocol in the past without any notable results. This time its a bit different, he tested to see which chemicals were built up in my system and he tested to see which supplements would clear these out. This current protocol he has me following is a newer program, it is not the traditional methylation protocol that you may have read about before(for those that are familiar). Instead of taking a full shotgun approach and testing all my genes and treating anything possibly defective, we are treating only what is tested as problematic.
He explained to me that in the past he has gotten poor results with the standard methylation protocol, about 80% of his patients had no change and 10% got worse. In this updated version the protocol is more individualized, so it will not overload my system making me sick and it will not miss anything making me sicker.
Today he started me on N-acetyl cysteine, Coq10, Fish oil, Vitamin K2 and K7, Vitamin D, B complex, Total Chelate, and Zinc.
All of these are low dose, most are just 1 capsule a day. Several are temporary, the Total Chelate I know will only be for a few months. It primarily helps the body detox metals and minerals that are harmful.
All of these are low dose, most are just 1 capsule a day. Several are temporary, the Total Chelate I know will only be for a few months. It primarily helps the body detox metals and minerals that are harmful.
He was telling me about how he personally started on this protocol a few weeks ago and has had great results. After work he's been going to the gym for an hour 5 days a week, without feeling sore or beat up afterwords.
He explained to me that lactic acid is one of the chemicals broken down by the methylation cycle, so by improving the cycle it is harder for the lactic acid to over build.
He explained to me that lactic acid is one of the chemicals broken down by the methylation cycle, so by improving the cycle it is harder for the lactic acid to over build.
Exercise intolerance has been a fairly unchanged issue for me, so it will be interesting to see if this begins to change over the next few months.
Day 2-
Today was an easy day. The doctor primarily worked on some structural issues with my muscles and neck. I have been having a lot of headaches recently, Ive had one everyday I have been here in Kansas so far.
The bands of muscle around my stomach are very tight, which is contributing to my not being able to eat. He's working on breaking all of the fascia loose to release the muscles.
He found one of the contributors to my muscular issues is poor circulation. Which is also contributing to my headaches. So he added two things today, one of which I had already been taking and I will only take it for about a week. The other supplement is specifically for my heart and circulation. It is supposed to strengthen the heart muscle to repair any damage it has taken on from the lyme.
The bands of muscle around my stomach are very tight, which is contributing to my not being able to eat. He's working on breaking all of the fascia loose to release the muscles.
He found one of the contributors to my muscular issues is poor circulation. Which is also contributing to my headaches. So he added two things today, one of which I had already been taking and I will only take it for about a week. The other supplement is specifically for my heart and circulation. It is supposed to strengthen the heart muscle to repair any damage it has taken on from the lyme.
Overall I have been very worn out today, I had a headache most of this morning and afternoon that wore me out. I took a short nap this afternoon for a while, that helped.
Day 3-
So yesterday afternoon I wasn't feeling so great. My heart was beating out of my chest and overall just not entirely pleasant. I was up most of last night and didn't sleep too great.
At my doctors appointment we worked on a couple hormonal things. He found my adrenaline was spiking, causing my heart to race. This was a side effect of starting on the B complex, the B vitamins weren't being absorbed correctly. So he made a homeopathic blend for me to take to help my bodies metabolism of B vitamins. Today this issue has been much improved. He also found some metal toxicity going on in my kidneys, most likely a side effect of some of the supplements started earlier this week. Along with the metals there was some kind of mold/fungus toxicity going on, so he made a homeopathic blend to combat that also.
So after yesterdays appointment there was a lot of different things flipped around in my system that made me feel not so great.
I was the last patient of the day for my doctor, so he spent another hour just talking to mom and I. That was a lot of fun, we may get to do that again tomorrow too.
At my doctors appointment we worked on a couple hormonal things. He found my adrenaline was spiking, causing my heart to race. This was a side effect of starting on the B complex, the B vitamins weren't being absorbed correctly. So he made a homeopathic blend for me to take to help my bodies metabolism of B vitamins. Today this issue has been much improved. He also found some metal toxicity going on in my kidneys, most likely a side effect of some of the supplements started earlier this week. Along with the metals there was some kind of mold/fungus toxicity going on, so he made a homeopathic blend to combat that also.
So after yesterdays appointment there was a lot of different things flipped around in my system that made me feel not so great.
I was the last patient of the day for my doctor, so he spent another hour just talking to mom and I. That was a lot of fun, we may get to do that again tomorrow too.
Day 4-
Todays doctors appointment was a bit more complicated than the last few days. After the last stressful 24 hours my body was showing a lot of disregulation to be fixed. He found some more hormonal things, fairly minor compared to how they have been in the past. My neurotransmitters were also all out of whack, which were the main culprits as to why I haven't felt so hot. I was low on dopamine, serotonin, acetyl choline, and gaba. Without these neurotransmitters its not possible to think straight, focus, sleep, nothin. He found the root of all of this to be in my gut, so instead of supplementing with replacement neurotransmitters he's given me a homeopathic to help heal this imbalance in my stomach.
Whatever happened to my stomach that we began treating today probably started to occur back in March, thats when I began having all of the symptoms of low neurotransmitters. So..unless we have several more layers to work through with my gut, today could be a potential turn around point.
I also tested negative for parasites today, this is a first. Of course this is subject to change and he may have me take a mild anti parasitic for a little bit longer just to keep away a recurring infection. But progress has been made.
Day 5-
On the final day we only worked on a couple minor things, mostly autoimmune related. Having bacteria in my system for several years causing issues has messed up how my body reacts to pathogens as a whole. So some of my symptoms now are caused by the autoimmune aspect of being chronically ill.
He has me taking two things for this. After this last trip I am once again taking a dozen or two bottles of supplements. After I left I was beginning to feel a bit better, less fatigue, better mood, and I was starting to gain a foot hold with how I felt overall.
Then last week I contracted the flu, Im over it now but still recovering which unfortunately means I don't really feel much different than pre KS right now.
He has me taking two things for this. After this last trip I am once again taking a dozen or two bottles of supplements. After I left I was beginning to feel a bit better, less fatigue, better mood, and I was starting to gain a foot hold with how I felt overall.
Then last week I contracted the flu, Im over it now but still recovering which unfortunately means I don't really feel much different than pre KS right now.
I am hoping that in the next few days I will begin to recover and for real start feeling healthier overall. Because right now Im worn out and my bones hurt.
The prognosis from this last evaluation is that I am most likely nearing the end of this whole ordeal. He's given me the option as to how long I want to wait to return to KS, depending on how I hold up Ill be going back over spring break in March or during the summer after school has ended.
My doctor is pleased with my progress, he said there is no need to retest some of the labs we have run in the past because they are now returning favorable enough results.
Now I just need to feel these better results....
My doctor is pleased with my progress, he said there is no need to retest some of the labs we have run in the past because they are now returning favorable enough results.
Now I just need to feel these better results....
June Trip to Kansas
Ok so, I have been saying for months that I would post my last trip to Kansas that I forgot.
Im finally getting my act together and blogging about it.
Day 1-
Im finally getting my act together and blogging about it.
Day 1-
Todays doctor visit went well, he spent around an hour and half with me. He went over my most recent blood tests, they are still slowly improving. Last time around we cut down on parasite treatment, this time around we are ramping that back up. Mycoplasma, parasites, and possibly heavy metals are the issues so far. My good cholesterol is still hanging lower than it should be, we may be addressing that this week . The body has to have cholesterol to build tissues and hormones, so without it, hormones can go out of control. My adrenals have improved, they are not 100% yet but they are getting better even since my last visit. Tomorrow he will be going on my hormone results more in depth so I will know more on what the plan for those will be.
He tested my reaction on all of the remedies I had been taking, most of them still tested beneficial so I will be continuing on them.
He did start me on several new things today, in total I have 13 supplements to take at the moment.
He tested my reaction on all of the remedies I had been taking, most of them still tested beneficial so I will be continuing on them.
He did start me on several new things today, in total I have 13 supplements to take at the moment.
The parasites are the cause of my recent fatigue that just continues to hang on. The mycoplasma is most likely what has been causing my recent gut issues.
Day 2-
This morning the doctor went over the CRT test results with us. Everything is still improving since last time even though I haven't been feeling so great. My gut, liver, and adrenals are all looking good. My kidneys are still taking a hit and also my sinuses, both of which have been an issue to some degree the entire time.
Today he mainly worked on my spine using the percussor and adjustor. He said this time around my back needed some work for sure, so today was dedicated to that. He did not add any new supplements today, it is likely tomorrow he will add more. Tomorrow he will be going over hormone results with me and he mentioned he may have a few exercises for me to start working on. Last time around he mentioned trying some exercises but then I got so sick we pushed it to the side.
Today he mainly worked on my spine using the percussor and adjustor. He said this time around my back needed some work for sure, so today was dedicated to that. He did not add any new supplements today, it is likely tomorrow he will add more. Tomorrow he will be going over hormone results with me and he mentioned he may have a few exercises for me to start working on. Last time around he mentioned trying some exercises but then I got so sick we pushed it to the side.
Right now I am still feeling well, very tired and worn out but not sick.
Day 3-
Hi all, today went well. It was just me and the doctor today, he told mom to sit out this appointment. This is the first time I have ever done that here, and it went well. Part of the time he went over the hormone results but he had already spoken to me about them during my phone consult with him a month ago. He did run through some of his testing to see where he could find some of the root of the imbalances we had tested for. It mainly showed up as emotions causing the hormone imbalance.
He found several homeopathics to remedy the causes. When he was done testing which remedies I needed he told me what each individual remedy would normally be used for. For me the remedies were for brain fog, over mental stimulation, fear, excess exertion, self doubt, OCD, and several other things. Some were expected like the brain fog over stimulation, but the others like self doubt and OCD were a bit surprising.
He said basically what I should expect to notice is before long my brain will start to calm down when the emotions begin to release, most of the emotions are affecting me on a subconscious level-not so much day to day.
Because the emotions were tied to hormones, once the emotions begin resolving my hormones should begin improving.
My hormone results this time around were low DHEA, which is created by the adrenals. He says this tends to go either low or high when the adrenals out of balance. Low is the better of the two, and mine isn't low enough to need to be corrected. Last time my hormones were tested my DHEA was too high.
Testosterone was to high, last time it was sky high this time its just a few points out of range. DHEA being high is what causes testosterone to skyrocket, when the body has to get rid of excess DHEA it gets turned into estrogen and testosterone.
My estrogen 2 was to high, last time it was also much much higher than it should have been because of the high DHEA. This time it is closer to in range but it will still need to be watched.
All of my hormone imbalances tie back to the adrenals being stressed, which is normal in anyone who is chronically ill. The adrenals are responsible for creating most of the hormones in the body, so when they are over taxed for a long period of time bad things start happening like chronic fatigue syndrome and hormone imbalances.
He found several homeopathics to remedy the causes. When he was done testing which remedies I needed he told me what each individual remedy would normally be used for. For me the remedies were for brain fog, over mental stimulation, fear, excess exertion, self doubt, OCD, and several other things. Some were expected like the brain fog over stimulation, but the others like self doubt and OCD were a bit surprising.
He said basically what I should expect to notice is before long my brain will start to calm down when the emotions begin to release, most of the emotions are affecting me on a subconscious level-not so much day to day.
Because the emotions were tied to hormones, once the emotions begin resolving my hormones should begin improving.
My hormone results this time around were low DHEA, which is created by the adrenals. He says this tends to go either low or high when the adrenals out of balance. Low is the better of the two, and mine isn't low enough to need to be corrected. Last time my hormones were tested my DHEA was too high.
Testosterone was to high, last time it was sky high this time its just a few points out of range. DHEA being high is what causes testosterone to skyrocket, when the body has to get rid of excess DHEA it gets turned into estrogen and testosterone.
My estrogen 2 was to high, last time it was also much much higher than it should have been because of the high DHEA. This time it is closer to in range but it will still need to be watched.
All of my hormone imbalances tie back to the adrenals being stressed, which is normal in anyone who is chronically ill. The adrenals are responsible for creating most of the hormones in the body, so when they are over taxed for a long period of time bad things start happening like chronic fatigue syndrome and hormone imbalances.
The hormone tests also showed my adrenal health has improved, a few years ago I was tested and I was in phase 3 out of 4 adrenal fatigue. Now I am down to phase 1, so not to far off from what they should be.
Tonight is probably my best night this week as far as symptoms go, still extremely tired after finishing up at the clinic but i can live with that.
Day 4-
Today was another productive visit with the doctor. We were talking about brain fog this morning, one of the issues I've had on my blood work is low cholesterol. Guess what feeds the brain? cholesterol. So he started testing me on some things this morning, he tested me for a straight up cholesterol supplement but that wasn't was I needed. However, I did need a ketone supplement. He added this ketone supplement to the mix and proceeded to test my reactions....and once the ketones were added several new things popped up. Hormones came up again and so did kidneys, so he added a couple more things to the mix and that corrected everything.
I do not digest fats well, I crave fats and I need more fats. Fats are used by the liver, our brains are literally made from fat, and our body burns fat for energy. By getting my body into a ketogenic mode and by taking ketones, all of the sudden this cholesterol and hormone problem which has been slow to resolve-fixed. The doctor himself was surprised at todays outcomes, he explained it all to us and how this works but he was surprised that so many different things were corrected by this small change.
We hadn't even planned on going into hormones at all anymore, but that came up once again. E1/2/3/, ACTH, growth hormone, testosterone, and maybe one or two other hormones flagged and were corrected today. So today we may have knocked out brain fog and hormonal issues, time will tell but this looks like its going to be a big hit.
I do not digest fats well, I crave fats and I need more fats. Fats are used by the liver, our brains are literally made from fat, and our body burns fat for energy. By getting my body into a ketogenic mode and by taking ketones, all of the sudden this cholesterol and hormone problem which has been slow to resolve-fixed. The doctor himself was surprised at todays outcomes, he explained it all to us and how this works but he was surprised that so many different things were corrected by this small change.
We hadn't even planned on going into hormones at all anymore, but that came up once again. E1/2/3/, ACTH, growth hormone, testosterone, and maybe one or two other hormones flagged and were corrected today. So today we may have knocked out brain fog and hormonal issues, time will tell but this looks like its going to be a big hit.
Day 5-
Todays doctor visit was focused on food sensitivities. He checked through all of his tests and I had 20 something food sensitivities, I did not test strait out allergic to anything but these 20 something items were causing an inflammatory response.
Because of how they treat these issues at the clinic, I don't have to worry about what foods I was sensitive too. He makes a remedy to counteract the reaction response my body has-and thats it. The remedy will negate any effects from those foods and will turn off that incorrect alarm response entirely once its taken full effect.
He went through to check any side of affects of this inflammatory response my body would have, it tied back to the adrenals. So energy would be affected by these sensitivities.
He also did a quick check for anything else I could be allergic to, I tested reactive to the metals in the chicken pox vaccine. he had me take a couple of homeopathic remedies to counteract that reaction. This one though was a one time occurrence as far as treatment goes, one dose was enough to stop that alarm reaction entirely. It also tied back to the adrenals and also the pituitary, which controls hormones.
Because of how they treat these issues at the clinic, I don't have to worry about what foods I was sensitive too. He makes a remedy to counteract the reaction response my body has-and thats it. The remedy will negate any effects from those foods and will turn off that incorrect alarm response entirely once its taken full effect.
He went through to check any side of affects of this inflammatory response my body would have, it tied back to the adrenals. So energy would be affected by these sensitivities.
He also did a quick check for anything else I could be allergic to, I tested reactive to the metals in the chicken pox vaccine. he had me take a couple of homeopathic remedies to counteract that reaction. This one though was a one time occurrence as far as treatment goes, one dose was enough to stop that alarm reaction entirely. It also tied back to the adrenals and also the pituitary, which controls hormones.
He checked my gallbladder today also, nothing pinging. One of the remedies he gave me early in the week has something in it for mild gallbladder support and that was enough.
He also checked thyroid, once again nothing came up. So today the doctor visit ended a few minutes early because he had covered all of the bases, my body wasn't screaming about anything else.
He also checked thyroid, once again nothing came up. So today the doctor visit ended a few minutes early because he had covered all of the bases, my body wasn't screaming about anything else.
All in all I counted up my supplements tonight, 5 liquids, 1 powder, and 16 pill bottles ending up with about 35-40ish pills a day for the next 60 days.
He is also going to have me follow to the ketogenic diet for a little while to see if that lifts my brain fog. This diet is a fat/protein based diet, both of which feed the brain. This is also a fairly good gut rebuilding diet because it limits sugars.
He is also going to have me follow to the ketogenic diet for a little while to see if that lifts my brain fog. This diet is a fat/protein based diet, both of which feed the brain. This is also a fairly good gut rebuilding diet because it limits sugars.
And here it all is. The original plan from here was to actually begin recovering and return in December to do a recheck.
This did not happen though, I returned in October to be seen again because I was feeling so poorly...
So I went to the clinic in July, October, and again this month.