The time for seasons of my life to change has come once again. School is starting back this week. My best friend is leaving to live in Missouri tomorrow. Another friend of mine leaves the day after, then my sister leaves this weekend.
I will once again watch my life become engulfed in school assignments. Life will get busy and I won't be seeing my friends very often. My best friend moving 10 hours away has probably affected me the most. He is the person I go to for everything, he's my support, my encouragement, my safe place, and of course the person I have the most fun with ( I promise I have fun and do normal fun things with my friends). Now I will have very limited access to him. I don't handle big changes all that well, I am already a rather emotional person these days. My emotions run their own way without rhyme or reason more often than not, but with my best friend leaving...I have been a mess.
I am taking care of my best friends fish now that he's leaving. Last night he brought his tank and his one fish (Sherman) to my house about 11pm. We got it setup besides one of my tanks and I now have the honor of keeping Sherman for a long time to come.
My friend stayed a while at my house because we knew it would be one of the last times we could hang out, maybe even the last before he leaves. I felt horrible, this last weekend has been extremely stressful. I worked a full day. No sleep. The usual human complaints.
It was so great hanging out but we did reach the point where I had a breakdown. I just lost it and started crying and thats all I could do. I couldn't speak. All I could do was just cry harder. I felt so pathetic, why is everything such a big deal to me? But my best friend was there for me. He hugged me until I could finally speak again. I was so worn out I couldn't stand up anymore, I think the first words I spoke to him were something along the lines of "I have to sit, I can't stand any longer". At this point it was after 1AM, he needed to go home but I was delaying it with my emotional neediness.
He held onto me longer and told me he would walk me to my room to make sure I could walk up the stairs alright without blacking out or collapsing (that has been an issue this summer, which he has first hand witnessed).
And because he's awesome, he let me convince him into staying the night with me. So we both walked to bed and I got to keep him for the night. I felt horrible, I haven't slept well this weekend and ive been burning the candle at both ends, not a great combo for anyone no matter their health situation!
My friend stood by me and helped me through it. I couldn't have asked for anything more. It wasn't planned but hey, I needed someone and he wanted to be that someone. He dragged me on to bed so I could finally relax and get some rest for the first time in several days.
It means so much to me to have someone there for me like that when I get sick. I hate being alone when my mind and or body decide to plummet into a black hole. Just having a friend there for support takes a lot of the pressure and loneliness out of the picture. Having my best friend there for me is even better. That meant more to me than anything I could dream up, its not easy being the outsider in a sick persons life but he knows he to help me out.
One of the things that made this weekend so stressful was the death of my grandfather. Friday morning my grandmother called my mom to inform her that she found my grandfather on the bathroom floor, dead. It was a total shock. He was not in bad health. They were supposed to be going on a cruise tomorrow for their 60th anniversary.
This last weekend instead was used to plan his funeral, which was today. His death was hard for all of us to deal with. I think we are all still in shock that he is gone.
We had some awesome friends help us out and bring us all a meal for after the service. The family came back to our house after the service and our friends had all the food and tables setup and ready to go, I don't think we could have asked for anything more.
Nonetheless, this has been a weekend of sudden and lasting changes. Emotionally I am worn out, physically I need rest. This time, its not just me but the whole family thats in the same boat as I am.
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Tuesday, August 14, 2018
Upon Exiting Kansas
My most recent trip to Kansas was one of the best and unique visits ever. Some good and some bad.
The good- I gained progress, I never felt absolutely drained dead of energy. I even went to the zoo! It was freaking hot so I did feel rather ill after that, but only for a little while. I have never had the energy to even think about going to the zoo or anything of the sort, this is monumental.
My doc didn't need to put me on a boatload of supplements this go round! I am on what an average person would call a lot of supplements, but to another lyme patient, not bad at all. I am also on a lower dosage of supplements, most of them are once a day! Im praying this does not change.
I was even more social than I have been in a while. Usually I am in and out of the clinic and I don't spend much time socializing, the siren song of the couch back in our hotel room is too strong.
One woman I met this last week I had met before. She complemented me on my shirt then said- Hey I remember you from last year, you are the one who was getting sicker and sicker instead of getting better. Then she spoke to me about what all had happened to me. She met me the week last March when I was at the clinic that I became so ill and went downhill, without ever fully recovering. I was impressed she remembered me, I remembered her face but that was about it. I was so sick that week...all I remember was the misery and bone crushing pain.
The bad-
My doctor and a few others left the clinic. I had no idea that this would be my last visit with my doctor! I got the email from the clinic about my doctor not too long after arriving back home. I was assured my doctor will continue in practice with the same level of care, just not at the Hansa Center. I am very grateful that I am feeling as well as I am feeling, because I do not want to have to go back for treatment anytime soon with such changes taking place. If I choose to go back to the clinic ill be assigned a new doctor, or I may wait a while and see if my doc shows up at another practice. For now, im gonna float in limbo.
The good- I gained progress, I never felt absolutely drained dead of energy. I even went to the zoo! It was freaking hot so I did feel rather ill after that, but only for a little while. I have never had the energy to even think about going to the zoo or anything of the sort, this is monumental.
My doc didn't need to put me on a boatload of supplements this go round! I am on what an average person would call a lot of supplements, but to another lyme patient, not bad at all. I am also on a lower dosage of supplements, most of them are once a day! Im praying this does not change.
I was even more social than I have been in a while. Usually I am in and out of the clinic and I don't spend much time socializing, the siren song of the couch back in our hotel room is too strong.
One woman I met this last week I had met before. She complemented me on my shirt then said- Hey I remember you from last year, you are the one who was getting sicker and sicker instead of getting better. Then she spoke to me about what all had happened to me. She met me the week last March when I was at the clinic that I became so ill and went downhill, without ever fully recovering. I was impressed she remembered me, I remembered her face but that was about it. I was so sick that week...all I remember was the misery and bone crushing pain.
The bad-
My doctor and a few others left the clinic. I had no idea that this would be my last visit with my doctor! I got the email from the clinic about my doctor not too long after arriving back home. I was assured my doctor will continue in practice with the same level of care, just not at the Hansa Center. I am very grateful that I am feeling as well as I am feeling, because I do not want to have to go back for treatment anytime soon with such changes taking place. If I choose to go back to the clinic ill be assigned a new doctor, or I may wait a while and see if my doc shows up at another practice. For now, im gonna float in limbo.
Finishing the Week
Im sorry I never followed up on the following visits like I usually do day to day. I just didn't feel like putting energy into writing, but I did feel very well the whole week. Pretty much for the first time ever.
Day 2!
I did not sleep so great the night before, i was awake most of the night because I just couldn't sleep. OCD and negative thoughts were racing through my head, sleep just doesn't happen on those nights. Plenty of crying yes, sleeping? nah.
So I talked to the doctor about those things and sleep and brain issues.
First off he put me right back on several things he had taken me off. So my break off of a ton of supplements was short lived.
He replaced 3 things I was taking with 1-2 things instead, this new stuff should work better than what I had been taken before. They also should not be permanent, they should be working to fix the problem whereas the few items before were as needed (which became as needed everyday).
We also worked again on neurotransmitters to replace something else I had been taking. Neurotransmitters are used for brain power, sleeping, waking up, thought control, concentrating, basically anything and everything your brain does. My neurotransmitters aren't in the greatest shape which could also lead to me not feeling hungry like a normal person would and it would also leave me awake at night.
We primarily worked on dopamine, serotonin and GABA plus one of the adrenal hormones called norepinephrine.
Dopamine is your brain power, no dopamine = no energy to think or become motivated. GABA is what turns the brain off at night to sleep ( chances are if you have racing thoughts at night or even all the time, not enough GABA in your system). Then Serotonin which is for mood control and its the natural anti depressant your body makes, at night your body turns serotonin into melatonin to sleep.
Since I don't sleep, I have racing thoughts, brain fog, and sometimes absolutely zero motivation I thought these things matched my symptoms rather well.
First off he put me right back on several things he had taken me off. So my break off of a ton of supplements was short lived.
He replaced 3 things I was taking with 1-2 things instead, this new stuff should work better than what I had been taken before. They also should not be permanent, they should be working to fix the problem whereas the few items before were as needed (which became as needed everyday).
We also worked again on neurotransmitters to replace something else I had been taking. Neurotransmitters are used for brain power, sleeping, waking up, thought control, concentrating, basically anything and everything your brain does. My neurotransmitters aren't in the greatest shape which could also lead to me not feeling hungry like a normal person would and it would also leave me awake at night.
We primarily worked on dopamine, serotonin and GABA plus one of the adrenal hormones called norepinephrine.
Dopamine is your brain power, no dopamine = no energy to think or become motivated. GABA is what turns the brain off at night to sleep ( chances are if you have racing thoughts at night or even all the time, not enough GABA in your system). Then Serotonin which is for mood control and its the natural anti depressant your body makes, at night your body turns serotonin into melatonin to sleep.
Since I don't sleep, I have racing thoughts, brain fog, and sometimes absolutely zero motivation I thought these things matched my symptoms rather well.
Unfortunately this wasn't as easy to correct as the eosoniphils on the first day. He added in 6 new things for me to take, two of which replaced 3 things I had been taking. So a little bit of consolidation did happen, just not as much as I would have appreciated....
Day 3!
I slept extremely hard last night and have felt pretty well all day today, which is unusual while im here. This evening I even spent some time out by the pool which I have only ever done once before, usually in the evening I'm too tired to get off the couch.
I slept extremely hard last night and have felt pretty well all day today, which is unusual while im here. This evening I even spent some time out by the pool which I have only ever done once before, usually in the evening I'm too tired to get off the couch.
In my doctors appointment today we actually ran short, we ran out of problems to work on so I was finished with the doctor early. Not the worst problem to have!
My doctor spent most of our appointment doing chiropractic work, adjusting this and torquing that. I am much less tense after all his beating around.
As far as treatment goes, only 1 new thing today. Through his testing he found an issue with my gut+brain connection.
He found an issue in my amygdala, which is the part of the brain that stores trauma. In my gut he found an infection called toxoplasmosis, which is typically carried by ticks and cats. It can be opportunistic.
In this he determined what was happening between my stomach and brain was that the infection in my gut was setting off a traumatic reaction in my brain, working as a signal to tell my stomach to not accept food. He made a homeopathic remedy to get rid of the infection and to balance out the disconnect, so in theory this could also be a big game changer as far as how i get to eat.
When all these new things start working and getting into my system I may finally be able to eat again.
My doctor spent most of our appointment doing chiropractic work, adjusting this and torquing that. I am much less tense after all his beating around.
As far as treatment goes, only 1 new thing today. Through his testing he found an issue with my gut+brain connection.
He found an issue in my amygdala, which is the part of the brain that stores trauma. In my gut he found an infection called toxoplasmosis, which is typically carried by ticks and cats. It can be opportunistic.
In this he determined what was happening between my stomach and brain was that the infection in my gut was setting off a traumatic reaction in my brain, working as a signal to tell my stomach to not accept food. He made a homeopathic remedy to get rid of the infection and to balance out the disconnect, so in theory this could also be a big game changer as far as how i get to eat.
When all these new things start working and getting into my system I may finally be able to eat again.
Day 4-5
Yesterday and today were both easy doctor visits. Both were a bit on the shorter side.
Yesterday he used something called neurophotonic therapy. He's used this therapy for me before on my first and second visit to the clinic two years ago.
Basically this therapy is a test and a treatment mixed into one. The test is to check how money body processes different wavelengths of light, he used red, blue, green, yellow, orange, and pink. While my body body is processing the light, the doctor runs his tests to see which nerve signals misfire. He finds the misfires and treats them with homeopathics, single doses in office.
This is one of those things that sounds much more complicated than it is, but it does have a profound effect on the nervous system and how it functions. I do not know enough about it to give a detailed explanation, I may have posted about it on visit number 1-2 a few years ago.
So yesterday I did not receive any more remedies to take home.
Yesterday he used something called neurophotonic therapy. He's used this therapy for me before on my first and second visit to the clinic two years ago.
Basically this therapy is a test and a treatment mixed into one. The test is to check how money body processes different wavelengths of light, he used red, blue, green, yellow, orange, and pink. While my body body is processing the light, the doctor runs his tests to see which nerve signals misfire. He finds the misfires and treats them with homeopathics, single doses in office.
This is one of those things that sounds much more complicated than it is, but it does have a profound effect on the nervous system and how it functions. I do not know enough about it to give a detailed explanation, I may have posted about it on visit number 1-2 a few years ago.
So yesterday I did not receive any more remedies to take home.
On the last day we did neurophotonic therapy again along with some more work on my gut.
He found that my spleen was not functioning up to par, which could also affect digestion. He found a couple other minor imbalances with my brain and stomach on top of the spleen, nothing terribly profound though. He gave me two new supplements to take home this time but these are chinese medicine herbals. So for anyone who knows about chinese medicine you'll know these are very strong and very different from standard homeopathic medicine and regular over the counter supplements. Any one whose taken them before can also tell you, they don't taste so great either. Kinda like mixing dirt and alcohol, add in some bitterness, pretty close to what this stuff taste like.
The neurophotonic therapy today was mildly different from yesterday, today he focused on neurology for sleep. So today when he did this therapy he focused on balancing out brain waves so that I will sleep deeper. He had me take a bunch of single doses of homeopathic to correct these imbalances, nothing to take home though.
He found that my spleen was not functioning up to par, which could also affect digestion. He found a couple other minor imbalances with my brain and stomach on top of the spleen, nothing terribly profound though. He gave me two new supplements to take home this time but these are chinese medicine herbals. So for anyone who knows about chinese medicine you'll know these are very strong and very different from standard homeopathic medicine and regular over the counter supplements. Any one whose taken them before can also tell you, they don't taste so great either. Kinda like mixing dirt and alcohol, add in some bitterness, pretty close to what this stuff taste like.
The neurophotonic therapy today was mildly different from yesterday, today he focused on neurology for sleep. So today when he did this therapy he focused on balancing out brain waves so that I will sleep deeper. He had me take a bunch of single doses of homeopathic to correct these imbalances, nothing to take home though.
I have a long list of supplements to take for the next two months but once again, even though its a lot everything is at a lower dose than in the past. Most of my supplements are just once a day instead of twice a day and at they, most are either 1 dropper or 1 tablet instead of multiple. Even though I still have a lot to take it definitely is not in the same way it has been in the past.
Our goal is for me not to need to go back to the clinic until March next year. My doctor thinks I can make it that long with how I have been progressing.
Our goal is for me not to need to go back to the clinic until March next year. My doctor thinks I can make it that long with how I have been progressing.
Overall I am feeling much much better than I have been after my last few visits. I actually had energy to use once I made it home this evening, I normally have none left after a long week at the clinic.
I had a lot more energy to work with this week and I have felt more stable than I normally do after treatment. I still had to rest a lot but not as much as in the past.
I am pleased with the results from this visit. Very pleased!
I had a lot more energy to work with this week and I have felt more stable than I normally do after treatment. I still had to rest a lot but not as much as in the past.
I am pleased with the results from this visit. Very pleased!