Its Fall

 Hello my little corner of the internet! Long time no speak, i'm still alive I promise!

I am nearing the end of my third quarter of chiropractic school! Next month I will be three quarters down, eleven more to go! 

In school I have joined the Applied Kinesiology club (AK) and have begun going to seminars to learn the subject the best I can. For those familar with AK and my story, AK played a significant roll in my healing journey. AK and CPK are two subjects my lyme doc is well versed in, and I personally one day would like to also master the subject. I still have a ways to go, like with anything the further into a subject I go, the more I realize there is too know. All in all school has been great but it is a full time schedule. Seminars on some weekends, 7a, classes 3x a week, 32.5 credit hours. Not much down time! Plus I am still making it to the gym, my current goal is 3x a week. I usually save it for the last activity of the day before dinner. 

As far as my health and lyme and PANDAS are all concerned, I am still doing well. I have moments where my fatigue slows me down, or I struggle to get a decent nights sleep. A couple months back I found a local place where I can get IV C again, I did my 3rd yesterday. Each visit I have gone up in dose, my first was 10grams, then 25grams, then yesterday was 50grams. The first two really brought my energy back up and lasted. I felt great! The 50g yesterday may have been a big jump, today I have been worn out but granted there are many reasons for this to be possible. 

I have noticed, comparing myself to other students, that I am not always to keep up with others as far as how quickly I learn. Some students here I would describe as being truly brilliant, not that anyone here would be described as "dumb" but some people can pickup new things very quickly. I am nothing but impressed, I just have to remind myself that I have a different learning style than other people. I am also far from the only one who has to put in real effort to learn new things.

One thing I learned about the chiropractic field, a lot of people do not choose chiropractic as their first career choice. A lot of students ended up here for other reasons besides " I just knew I wanted to be a chiropractor". To clarify, I do not think there is anything wrong with this, its just an observation. I have known for years what direction I wanted to go in with my life. 

My roommate for example wanted to be a dentist first, another friend of mine was in veterinarian school and decided she didn't like the field as much as she thought, another guy decided he needed to go back to school and this was a good place to go. Everyone has a different reason to be here, but I did find it odd a whole lot of students never even went to the chiropractor before becoming a student here. Not once. 

I have a lot of thoughts on this haha, but for now I will keep them to myself. I think in part some people thought it would be an easy way to get the doctor title added to their name, or bone popping sounds like fun, I don't know. I do know, there are a lot more benefits and meaning behind chiropractic than I thought there was. 

It is amazing to me, to look back and see the journey that God has placed me on. The pathway that taught me the patience to reach for more information and the caring spirit to want to help others. If I was in this just because I wanted to be a doctor, Im not sure I could do it. I am looking forward to learning all that is available to me and the options I will have for when I reach practice. 

Week with the Doctor

Just Completed my Second Week at the Clinic for the Year

I spent the week with the doctor, this is the second trip this year.

It went extremely well, my test results as a whole have stayed consistent and I haven't gotten any worse from the last time I visited the clinic. I have been feeling great, going to the gym 4-5x a week, i've been sleeping well, had decent energy, and for the most part feeling normal. He is happy with the progress I have made since my visit in March, once again he said there is no lyme or pathogen's in my system causing me issues, its just a matter of cleaning up the damage that the lyme has left.

Since this time last year, I have gained around 20lbs, which is a big deal for me. I still need to gain more but it is not something I need to worry too much on. This week the doctor did spend some time focusing on my gut so that in theory I can start eating more sooner rather than later. He is not too discouraged by how much I eat, but he does want my appetite to be more consistent (because some days I couldn't care less if I ate or not).

He did work on my gut, brain, lungs, liver and heart this week and that was it. I am taking probably half of the amount of supplements as to what I normally would be taking-which is fantastic. No parasites either, which was a problem forever. Parasite treatment was the worst too!

I am pretty excited, I won't need to see him again until March next year. If it wasn't for my school schedule limiting when I can and cannot go I probably wouldn't go back to the clinic for a year. My March visit next year will probably be the only visit to the clinic next year, which would be the best yet. This year and last, I visited the clinic two per year. Back when I first started going I went 3x the first year, I think 4x the second because I ended up getting very sick (or it may have been the third year...I would have to look back at my notes). In total I have been going for 5 and a half years, which is daunting to think about. Niether my parents, my doctor, or myself thought it would take this long to get my body back to normal. I still struggle with issues here and there, sometimes I do still feel depressed or defeated, I still just get totally worn out sometimes, and I do have to push myself hard to keep my motivation. But. I am doing well. When I have a bad day, I know it will be short lived. Instead of a bad month its just a bad day. I like being able to live my life without really having to think "oh yea, I have lyme disease"

I have made great progress over the last year, I am feeling much better and feeling more normal. I have to say I have one of the best doctors in the world!

I probably will post less on my blog only because I do not have as much to share, but I am not leaving by any stretch. Years ago when I spent so much time reading lyme blogs I found that some would just end, without any idea as to what happened to the writer. Some others would end when the writer started doing better. I want to continue to catalog and share what happens with my life, because Lyme has been a part of my life for so long it has shaped my future.

Because of Lyme I chose to pursue a career in alternative medicine, I will be applying to grad schools in the next month or two. I plan on becoming a chiropractor, I am also considering pursuing a Masters in psychology so that I could be a counselor in addition. In December of this year, I will finally finish my undergraduate degree in psychology. I am super excited for this!

Years ago, in one of my more emotional posts on what lyme can do to ones mental state, I talked about how I felt like it hurt me more to dream about the future because I was not healthy or capable enough to do the things I needed and wanted. I feel like now, I can dream all I want and my body wont be what holds me back. I know psychologically I will struggle a little bit more than others when it comes to some things, but because I know that and I have had some great resources, I will now be able to cope more so than in the past. Brain fog and forgetfulness still happens, it may even be a "normal" amount-truthfully I don't know. My doctor told me that most likely what will happen is that I will start remembering more from here on out, but the things I have forgotten over the years may or may not come back. SO five years from now I will remember this point forward, but some things from five years ago now I may never get back. Which is ok, because I still am making progress.

I have some other "health" goals I need to push for myself that all of us, chronic or not, need to be working on. I have mentioned before about how much my psychology teachers have pushed us to manage our stress, because that will be the prevention we need to keep away from all sorts of ailments. I need to work some more on my spirituality, I have gotten so bad at reading books of any kind because it is hard for me to sit down and read-especially if it is something I want to read to remember. I need to get back into doing some reading and studying, outside of school.

I pray often but I would not say I have been pushing my relationship with God very much as I should be.

I want to continue being able to share with others with lyme or chronic illness that there is hope, ignore what the doctors or naysayers say and push your own pathway towards healing. I have no idea if I will ever have a lyme flair again, I may not or I may have a lot more ahead. Who knows. But what will count is how I handle it mentally, physically and emotionally.

IV C

This morning 
Im spending the morning getting an IV of vitamin C, magnesium, and amino acids. In hopes that this will make me feel better. In the past the IV's have helped a lot, my practitioner has been unable to get the glutathione due to company backorder. Which is surprising to me that months later that it is still on back order, but anyway, here we are.
Yesterday at work i used the cold laser on my head for a few minutes to see if that would help, and it did. In the past when anxiety and ocd were severe the laser seemed like it would reduce the severity every time. It works by decreasing inflammation and increasing circulation, which apparently my brain needs.
PANDAS and lyme both cause inflammation in the brain, for one lyme insomnia can be inflammation related. Im wondering if maybe I am going through a PANDAS flair, judging by my symptoms I have been having it wouldnt shock me if the stress from school was causing me to have a flair.
I havent really had any full blown anxiety, but I have noticed I have had a lot of thought fixation, heart racing, fatigue, food tastes bad, low appetite, my stomach has been making weird noises, and I havent felt just right.

Yesterday morning I was feeling terrible, and I was dragging and didnt really want to work or do anything. In the afternoon I did the laser, and by that evening I was feeling much much better and I was able to have fun with some friends. Total flip. Back when I had full on PANDAS I did the laser therapy frequently, I think it may be time to get back to that, at least for the duration of the school year.

I tested myself on the biofeedback machine yesterday, its a machine that can find stresses in the body electronically, my body had stresses towards strep, lyme, chronic inflammation, respiratory virus, and a few other nasty things.
I have been around a bunch of sick people lately, who were diagnosed with a respiratory virus. All over the last two weeks, I partly wonder if maybe my exposure to the virus, could have flipped out my immune system. Instead of me getting a respiratory cough like they did, maybe maybe immune system response made me feel poorly and I ended up with inflammation in my brain instead.
I know in the past when I have had minor symptom flairs, usually it can be traced back to some sick people around me. I dont *normally* get regular sick, like a cold or anything like that. It does happen but not all that often.

I am going Monday to get some blood drawn, its been a while since I have had everything checked out.

Depersonalization

Lets Talk
Ok so my four years or so that I have been writing this blog I have shared (overshared?) on my mental health, which was severely affected by the lyme.

People that know me in person who read this blog, know how secretive I am about all of my mental health issues. Its not that I dont like to talk about it, I just dont want to seem like A complainer. Its easy to over share to a listening ear.
At my worst, I was collapsing from panic and hiding it. I would feel it coming on and I would go hide in the bathroom or shower (if I was home) and wait it out. I was hellbent about letting anyone see my breakdown, Im a save your tears for the pillow kind of person. I think that it is great to have people to share with but I dont think its the greatest to share anything and everything, all the time. Plus I am afraid of letting anyone see me fall apart, why? Not sure.

Earlier this year when I had to do hyperbaric oxygen therapy, my brain began recovering and my anxiety began going away as well as my panic and other psychological symptoms. The game began to change and I realized I was beginning to feel like "me" again. I would wake up and I was me, I would go to bed and I was me, I would go to work and I was me. I had forgotten what that felt like, I still dont entirely know how to explain all of it. I dont know how to describe what "I" feel like vs. what "that" felt like. Cold? Dark? Watching from the shadows? Living in a dream? Watching the world go by in technicolor?

I began recovering during the summer and I am still learning to rediscover myself. One odd thing ive done (or at least odd to other people) is that I dont date. At all, ever. Never been on one, never tried. And ive rejected the offers ive gotten (and ive had offers from both genders, but thats a story for another day).
Its scary to look back and realize how much I have forgotten. Its like I can see blank spaces in my memory.
Before the PANDAS I had brain fog and trouble remembering and it was severe at times, but I dont think I felt like I had forgotten chunks of my life.\
Now I think I can say that, now that I have pulled out of the PANDAS nightmare its like I can look back and see myself in this bubble of an outside reality. Its hard to believe that I felt like that, and that my body didnt feel like mine and how I could go to work and function an entirely normal day...except I spent every single minute every day thinking about how I wanted to get out of my body. I wanted to get out of it, I felt cold all the time (emotionally) and I truly didnt enjoy anything.
I had some good days of course, but I had an overwhelming number of scary days where I know that I should have reached out to someone, a professional.

Fast forward to school, this semester. Abnormal psychology class with my favorite teacher ever!
Weekly, we are assigned a case study to read on different mental dissorders. This semester I realised I could relate myself and have a story to tell on probably 85% of the disorders that we covered. OCD, depersonalization, anxiety, panic +agoraphobia, narcissism, phobias, and a few im forgetting.
On the bright side, I did a great job writing and I got some amazing grades and some emails from my professor about how great of a job I have done. But I have talked to her and she knows about my health issues and I have written on them for school, all in all, I learned more about me and the seriousness of what some of what I went through was.
Depersonalisation was one that we covered towards the beginning of the semester, watching the assigned videos and reading the case study was an eye opening moment.
Depersonalization and Multiple personality disorder are related to eachother, usually depersonalsation will happen first and in the worse case scenario a persons personality will split and create "alters" to "protect" them from whatever the initial trauma was.
Multiple personality disorder is extremely rare, <1% of the US population. Often shows up in young kids, not necessarily adults (if I remember correctly).

The class really made me understand what kind of stress my body was under, for me to pull away from "myself" and feel so "gone" and distant, my brain would have had to have been under a heavy assault. I stand in awe today, that I am still here. I am for the most part, OK. Progress is still to be made but ya know what? Im alright.
I thank God. Once again man didn't have any answer as to what was wrong with me and they couldnt see the severity of what was happening to me. I prayed to die, a lot.
Suicide is something that gets covered extensively in any psych class, its a big deal and it is not as uncommon as it should be. I know for a fact that if I did not pray to God and have faith that everything was for a purpose, and that I did not pray for God to lead me through this stronger than when I first started, I would have killed myself. The professor talking about this subject was "triggering" it woke up a lot of thoughts and memories and stirred plenty of emotions. I put myself in the shoes of others, for the "what if" scenario and I did not want to walk that reality.
Thats not what I was put on this earth for.
I learned that if I had been truthful about my psychological stresses to my therapist when I was going, that I would have been put on high risk suicide watch because I met the criteria by 3 fold or so.
One of the questions during this particular lesson was, how many times a day / week do you think about death or suicide.
The "normal" number, was not a very big one at all.
The amount of times a "sick" person who either might or did commit suicide, was a fraction of my number. A small fraction.
In other words, I contemplated death and suicide by conscious thought way more than what was okay (not that any is okay, our thoughts can be sending us a message).
Depersonalization plays into a lot of psych issues including PTSD, depression, MPD, and severe panic or trauma. It is another psychological issue that does not just "happen" and "last", like (unfortunatly) depression or anxiety can.
Anxiety usually comes in a wave, may last minutes or hours, but then at some point it will end and may not happen again for a while. Depersonalisation is kinda like a cloud, it hovers and stays, lasting for days. Weeks. 2 years.
It alters reality and perception, self image and outlook on life.

I now understand why I did not handle lyme the same way as some of the other people I know who have been affected, it was due to PANDAS and severe infectious+autoimmune trauma to my brain and nervous system. I am grateful for my recovery, I am not done yet but I am "me"and I am thankful to God for giving me purpose and giving me the voice to help give others hope. I havent met anyone on this planet yet that hasnt been through SOMETHING that was in need of empathy and understanding.

Why do I bring this up?
Todays post has nothing to do with me, i'm doing alright and today was a good day. I was watching a video on youtube from a person I watch on a frequent ish basis, and this person was talking about why they havent posted anything in a while and it was due to depression, anxiety and depersonalisation.

This person has been on meds for depression for almost a decade, and this year they began to quit working and the replacement meds weren't working either. He talked about depersonalisation and how he felt like he was in a dream, he was talking on the phone with his mom and said it didnt feel like he was even talking on the phone or doing anything. He was just there.
I couldnt help but wonder if he tried alternative medicine like I have, would he be recovering or have answers as to why the drugs stopped working?
Watching him talk about what happened to him woke up some thoughts from class that I thought I should share with you guys. Offer some hope, life can and will get better. I am thankful I only had this for just a few years instead of decades.
I cannot stress enough that help is out there, it just takes a little time and patience to find. Dont ignore what your body is saying, whether it be joint pain from lyme, panic attacks from strep, PTSD from trauma, whatever it may be. Its a side affect of a problem that our bodies are trying to get us to pay attention to, they arent a torture sentence for punishment.

I can easily keep talking about this subject, working around sick people and lyme patients on a frequent basis has opened my eyes towards how common psychological suffering is...and how many different ways it manifests itself.
Its sad that we are all walking this earth together, each one of us fighting a personal battle either small or large, and yet we are all "good" whenever the shallow "how are you?" gets asked.
Love is free, we dont have to understand anything at all to show kindness to someone in need. I talk a good talk when it comes to seeming like I know a thing or two about disease and psychological things, but at the heart of it all I just want to be a caring human who wants to warm someones day. I do not understand what it is like to have cancer, to lose a spouse or a parent, or what it is like to fight in combat, but I can still offer someone a listening ear and the few thoughts I have to share (Im a guy I like to offer a solution, its how im wired).

Anyway, I havent written anything long in a while so I guess its been over due. I wasnt even planning on writing anything today, but thats usually how it goes.

"Give thanks in all circumstances, for this is Gods will for you in Christ Jesus" 1 Thessalonians 5:18

Ponderings

Anxiety Returns
In the last week my anxiety has not been so great, and it isnt the usual "stress" anxiety where my thoughts race and I cant stop thinking about whatever it is thats bugging me (usually school). Its the kind where I feel like nothing is good enough, food doesnt taste right, I dont talk much when Im out with my friends, and my muscles will tense up randomly. I mean tense up hard, not like a cramp, but my fingers and or toes may curl, my calfs and my arms will tighten up and maybe contort into an odd shape thats not exactly "resting".
I dont know how else to explain it, but my body hasnt been happy. School is stressful right now and I have had to get a tutor for one class, and I havent even been able to find a tutor for the other class I need help with. And that is a big deal, I thought that was the only thing causing my PANDAS type anxiety.

Yesterday was a crazy day, it was very reminiscent of how I felt last year when I was doing so terrible. I was tired the whole day, but my brain worked well enough for me to get a lot of homework done (and the homework seemed to make sense), then last night I started feeling worse. With one of my fish tanks, I had a small issue that ended in a wet floor and an annoying mess.
Usually that doesnt stress me out too bad but yesterday It made me mad, I dont normally get mad. I had three tanks set up, one saltwater, one freshwater with just plants (no fish), and then the tank my used to be best friend gave me that had his fish in it (he couldnt take it to college).
I have been way too busy to maintain the tanks, so I decided that the two freshwater tanks needed to go. I texted some pictures to some friends and said whoever can help move them can have them, an hour or two later I was carrying my old best friends tank out with his fish to take over to another friends house (she was friends with him too), and another friend got my plants.
I thought great, two stresses out of my way. I was sad to get rid of the fish, even if I don't talk to that friend anymore, I like fish. I made sure the friend who got the fish was a friend that wouldnt kill it, but still I felt sad.
I was borderline manic yesterday, it was a day I couldn't stop and sit down. I cleaned, I took down and moved a fish tank, I carried 18 gallons of water across my friends yard and up the stairs, in one trip (8.3lbs X 18=149 LBS, I weight 147LBS FYI). All day I constantly felt frustrated and like I needed to be accomplishing something, I couldnt just stop. Yesterday I also had tears in my eyes several times, not crying or upset, it just happened. Which is something else that happened a lot last year and the year before with the whole PANDAS thing.
When I carried the 3 jugs of water into my friends house, in one trip, with one jug handle in each hand and on hanging from my wrist, I knew something wasnt right. I cant normally lift my bodys weight for one, much less carry it around and up stairs, so that was my tip off that I must be having an adrenaline rush or something. The water was so heavy it left a bruise on my wrist where I carried it. Didnt hurt when I carried it yesterday.

Then today, I woke up feeling not so hot. I had math class today and I met with the teacher after for some tutoring, and it went well, stressful but well.
When I got into my car I realised I was about ready for a mental breakdown and I was worn out, not terrible like I used to have happen to me, but I felt it. I had tears in my eyes on my way back to work, again no specific reason. Same thing when I got to work, I had to wipe my eyes with a tissue a few times when I was working.
Then when it was all over and I went home for dinner, I got a notifcation on my phone and all of my emotions from the last week or two made sense.
It was a calendar notification, this day 3 years ago is when my old best friend and I became best friends, its the day we first hung out and I first went over to his house. Every year after we would always do something for fun to celebrate. Except this one. I had forgotten about it, by some miracle. It hadnt even occured to me that today was any other day. But here we are.

I always associate the PANDAS symptoms and that friend together, because I got the PANDAS a few months after I first got to know him and hes the one I always talked to about it (and the only person I felt safe talking to about it because he seemed to get it). So to me it makes sense that those symptoms would coincide with thinking about that friend...
I cant believe that my body is still so...reactive? Im not sure how to word it. I have never been one to be all that attached to people, I have my set people I like and the ones I feel comfortable with, and thats good enough. I dont really strive to make friends with everyone I can at school (in fact some of those people I avoid because I think theyre gross, because well...some college kids are gross).
I dont understand why I cant get over this one person, its been months since Ive spoken to them, I have much better friends that wouldnt ever just drop me off the face of the earth. Im about to facetime one of them in a little bit, and I was facetiming one of them earlier from work.
Im telling myself its related to the PANDAS because of the OCD factor. Not sure if its true or not, because truthfully I dont know.
I even have dreams where I see that friend, usually in the dreams we are just hanging out doing something we used to do. I had two dreams or so last week. I didnt do that when we were friends, like ever at all.

I guess I need to keep on praying. God has gotten me through everything so far and he has placed some amazing people in my life who I love. One day, if its still bugging me and I find myself with free time, maybe I will talk to a counselor about it. I just hate to feel like I have made that big of a deal about this one person or let this person control that much of my life in some way.

It will be interesting to look back this time next year and see whats happening. Ive thought about last year a lot, and I like this one a lot more than the last several. By a ton. Next year is gonna be even better, Ive already decided it.

Now if you'll excuse me, I have a calendar notification to permanently delete.

Introducing-Dr. Psychiatrist

I Did the Thing I Never Wanted to DO

I did it. After years of needing something I finally did it. I went and saw an actual, MD Psychiatrist, mentioned in my last post. I pushed off ever seeing a psychiatrist because I never wanted any of my health issue to actually "be in my head". Lyme is so often referred to as being a fake illness and its "all in peoples heads" and I never wanted my head to need formal examination.

I found the compromise though. I went to a special clinic which does more than ask me about depression and has more to offer than self help questionnaires( i.e. are you sad? Do you feel the whole world is against you? Do you have a problem with drugs? Have you ever smoked marijuana? Do you want to kill yourself? OK ill stop there)

This new clinic is a fairly newer discovery for me. Especially considering its almost considered local even, only an hour away. This clinic takes a more comprehensive and wholesome look at the psychiatric situation, they take into consideration thyroid health, infections (lyme being an infection they're familiar with), hormones, traumas, brain injuries, allergies, diet, exercise, supplements.
I feel more comfortable being evaluated by someone who is familiar with more tools than just the hammer, if you will. They also use a specialized brain scan to see the brain itself, they did an active and a resting scan on my brain.
With these results they can see which parts of my brain are over active and which are under active.

It was all a very fascinating process, ive never done anything like this before. Truthfully I never thought Id need to either.
The patient coordinator (or whatever her title was) spent a significant amount of time with me getting more details on my symptoms, even the lyme symptoms. It was a very thorough yet comfortable evaluation. She asked me to explain some of my symptoms, like what is brain fog for me, in which I said - Its hard for me to retrieve thoughts, very hard to focus, difficult or impossible to remember things, and hard to string together thoughts.
Ive never really had to refine the definition of a symptom like that before, I appreciated how well they were paying attention to detail.

On day 1 they had me come to the clinic, and do the first brain scan. They gave me an IV of some sort of dye then they had me play some computer game with letters. Man was that hard, I am so glad I didnt get a grade for that because it would have been really sad LOL. The point of this activity was to activate my brain, get the circulation flowing.
Then I went in to be scanned.
After the scan I met with the patient coordinator for my story and health history.

Day 2 (final day). They had me relax in a room alone comfortably for 10-15 minutes to get my brain to wind down and go to its resting state.
Following this I was scanned.
A few hours after the scan I met with the Doc. She was very friendly and again, thorough.

The first thing the dr. said to me was So you are actually making A's in school? I said I do, its hard but I do.
She was surprised and commended me for being able to do that.
She proceeded to explain more about the scans and what the process was, and what a normal scan looks like.
Then came my scans. My results. The things that determined what was actually, legitimately going on in my head.
She told me I have a severe amount of brain inflammation throughout and this needs to be corrected ASAP. She said this is part of my cognitive impairment.
She showed me the relaxed scan first.
On this, I had an overactive basal ganglia (fight or flight part of the brain) and a very overactive thalamus.
The inflammation created a diamond pattern.
The basal ganglia is a survival part of the brain, its what kicks into gear when you are in trouble.
Now keep in mind this is my RESTING scan. When im supposed to be calming down or getting ready to sleep-my brain goes into survival mode-red alert-whats happening
Then the Thalamus is related to post traumatic stress, I do not remember all this was associated with.

On the active scan-
I had an underactive frontal cortex, which is the part of the brain that does the thinking. Its part of the Here and Now, taking in whats going on and responding, focusing, concentrating.
The left temporal lobe is also underactive, which is related to memory.
So the thinking and memory parts of my brain are missing a lot of function.

When im at rest, my brain goes on red alert. When im active, it shuts off. The basal ganglia is over active on both scans, but less over active on the active scan.
Which is why I enjoy keeping busy so much, it tones the stress in my head down. Working long hours on my car-its like im literally helping my brain hide from itself. OR other activities.

I was also told by something showing up on my scans and by symptoms that I may have a vision disorder called Irlens Syndrome (also called scotopic syndrome). Which is a processing problem in the brain for vision, not in the eye. It can in some cases be caused by infections causing damage.
This disorder is related to how the brain intakes colors, and with this problem it can cause issues with reading, skipping lines, and remembering what you read (very condensed version of symptoms). The treatment for this is to wear special colored glasses or contacts. I would need to see someone trained in this to be evaluated and figure out what color filter I would need. Im not sure when I will be pursuing this....

I was also told I most likely had PANDAS based on the severely overactive basal ganglia and by what we believe may have been a strep infection last March.
She told me the sudden onset of anxiety and OCD is a huge, huge, indicator for PANDAS. She did say she didnt really see it in adults but it was hard to argue with the symptoms and tests.
(ha, guess im special!!)

I had a strong strong feeling I was about to be diagnosed with PANDAS. Ive been pursuing that for a couple months now, trying to learn more on tests and treatments for it. I did not however know that PANDAS turned on the basal ganglia like that though (im sure ive read it, but I dont really understand the brain all that well. and I forget things that I dont understand). I thought PANDAS was really only visible through symptoms and strep tests.

I was told I may have had a little bit of ADD judging by my frontal lobe, it may not have been severe enough pre-lyme to have caused me any noticeable issue. The stress and damage from the lyme could have brought about its presentation.

Treatments-
#1 she emphasized that I do, hyperbaric oxygen. Ive never done this before. She said its vital for neurogenesis and bringing circulation back in my brain. She said I need to do 30 treatments.
Currently attempting to figure out the logistics of that.

#2, she gave me two supplements to take. One is a mix, high dose fish oil, strong memory booster and multi vitamin. The other supplement is for sleep, it has GABA, L Glutamine, Taurine, Tyrosine, and phosphitadyl serine in it.

Ive started the supplements. Hasn't been long so I do not really have much to report. The first supplement actually covered/replaced some thing I had previously been taking. Thankfully I actually came off some things by starting this. Thats a very rare occurrence in my world!!

All in all
Ive been told I have severe inflammation in my brain and whole body, I have brain damage, possibly Irlens syndrome, and I have PANDAS. Ill be darned. The dr actually managed to impress me with what they did and what they found. It isn't all that often a dr actually makes me say wow.

I was told 6 months on the supplements and 30 treatments on the hyperbaric.

The reason it took me so long to post on it (a week!), it took me a bit to digest all of this. I know I was expecting them to find something wrong ( I would have been mad if they didnt!) but just the fact that things were found and they do have significance.
On top of that, I still am learning about all of this. Im still reading through all my reports and understanding all the information ive been given.
And still checking out what options I have to help me out as far as symptoms. Im taking herbal anti depressants, GABA, L-Theanine, and some hormonal supports which have all helped with anxiety over the last several months. I think that last time I had a full breakdown was the end of October/beginning of November. The crying and severe anxiety has improved.
Im hoping this new protocol with get rid of the anxiety altogether and bring back my brain function.
I just feel so apathetic and empty, id really really like to see that disappear and get replaced with the old me
Maybe thats a big request, but surely with enough time and patience??'

One last thing. The best explanation as to how I feel was said by Shannon Goertzon on her blog four years ago in this post called Finding My Brave
Her blog posts were the main reason I searched out PANDAS, her symptoms match mine to a T, she seems much worse though. I highly suggest Shannons blog, she's been through the wringer more than once!! Very intelligent and endearing woman to read from!