Even though I walk through the valley of the shadow of death,
I will fear no evil for you are with me;
your rod and your staff, they comfort me.
Psalm 23:4
Some of you guys may have noticed, I follow a bunch of blogs. One of the blogs I read is written by Victoria Wilguess.
Victoria was diagnosed with lyme disease as a young teenager just like I was. Except unlike me, she has progressed in her infection....In a few hours she will be undergoing a major, rare, and extremely painful heart surgery awake!
She has a heart arrhythmia that needs to be corrected, but because of where the arrhythmia is occurring specifically (near her diaphragm) not just any doctor perform the surgery.
Here is where she explains it
Victoria has an inspiring amount of faith in God, especially considering all of what she has gone through. She has undergone treatment at a clinic in Nevada for weeks and months at a time, multiple surgeries, numerous visits to the ER, and tremendous (and constant) amounts of pain.
She just has not found been able to find relief, and tomorrow her story will continue.
I would like everyone who reads this post to join me in prayer, to pray for quick healing, peace after the surgery, no more setbacks(shes had enough), and for minimal pain. Victoria also has a prayer list I would like to share-
"-Peace and patience for my family and friends as they wait during my surgery since it'll be an all day surgery
That they be able to get the central line IVs in easily
That I'll be able to do the surgery without sedation and not be in a lot of pain
That the surgery will work and the arrhythmia won't come back
That there will be no complications during and after surgery
That recovery will go well
That I will be able to show God's love to the doctors and nurses taking care of me
This is odd, I know, but please pray that my bladder problems don't flare up during and after surgery. Bladder catheters really irritate things and I'll have to have one for the procedure and after when I'm on bed rest for 6 hours to prevent bleeding from where they went into my heart. "
Although doctors do not have all of the answers, just their best guess, God knows. He knows what we all need, including Victoria when she spends over 10+ hours on the operating table later.
I am praying for good things to come from this Victoria!!
Updates after the surgery will be found here
Showing posts with label Victoria. Show all posts
Showing posts with label Victoria. Show all posts
Monday, November 30, 2015
Sunday, October 25, 2015
Babesia Symptoms
Earlier this week I posted about how I have stayed more tired than usual. I am generally tired but I can stay functional...well most of the time.
This past week was different. It was like, I would trade anything for sleep. It was like nothing was worth getting out of bed and using my valuable energy.
Yesterday something occurred to me. I noticed my abdomen was beginning to feel sore, around ribcage. Turns out this is the spleen area. The spleen processes blood cells, which babesia infects. So I think I may be going through a babesia flair...
In the past I have taken Cumanda and Quina from Nutramedix, and the herb cryptolepis.
The Cumanda and Quina seemed to work a little, but they just weren't what I needed. The effects just didn't last for me. That's when I tried the Cryptolepis tincture. It was like a magic bullet for my fatigue! The results were almost miraculous. Within a few hours of the first dose (15 drops) I felt better. I walked the dog for fun and did some other stuff I enjoy doing on good days.
I started at 15 drops 3x daily and quickly moved up to 1/2 tsp 3x, I did this for 5 months.
I stopped taking it in August because I was no longer feeling the affects. I wasn't having the same fatigue I was having before either. I haven't taken any anti-malarials since then...Maybe its time to give it a shot again.
I've never tried red root, I think I will order some of that also and report back!
On another note, I follow this blog- http://victoriawilguess.blogspot.com/ by Victoria Wilguess. She has suffered from Lyme Disease also. Like me she went several years without an answer or any treatments. Another thing that hit close to home was that she was also a teenager when she got sick. This is harder than most people can understand, unless you have been in the situation personally.
True friends to support you and family members to understand you can be scarce. That alone can bring someone down, on top of that she was a teenager. That is a stressful time for everyone at some point. She somehow stayed positive. I believe its because of her faith in God. I know that's what she will tell you.
Victoria has been going through some new treatments lately. Included a stem cell transplant, that she will have to go to Germany for.
Having a chronic illness is hard. There is uncertainty, pain, and a distancing from the reality previously known.
Victoria (and myself) had to grow up, just to learn to cope. This is not easy for kids who were used to running around and playing games. You cant explain to another 12 year old your sitting out of tag because your tired or in pain.
Victoria has been on my mind and in my prayers the past few weeks. It would be great if you could keep her in your prayers, she is going through a lot :)
This past week was different. It was like, I would trade anything for sleep. It was like nothing was worth getting out of bed and using my valuable energy.
Yesterday something occurred to me. I noticed my abdomen was beginning to feel sore, around ribcage. Turns out this is the spleen area. The spleen processes blood cells, which babesia infects. So I think I may be going through a babesia flair...
In the past I have taken Cumanda and Quina from Nutramedix, and the herb cryptolepis.
The Cumanda and Quina seemed to work a little, but they just weren't what I needed. The effects just didn't last for me. That's when I tried the Cryptolepis tincture. It was like a magic bullet for my fatigue! The results were almost miraculous. Within a few hours of the first dose (15 drops) I felt better. I walked the dog for fun and did some other stuff I enjoy doing on good days.
I started at 15 drops 3x daily and quickly moved up to 1/2 tsp 3x, I did this for 5 months.
I stopped taking it in August because I was no longer feeling the affects. I wasn't having the same fatigue I was having before either. I haven't taken any anti-malarials since then...Maybe its time to give it a shot again.
I've never tried red root, I think I will order some of that also and report back!
On another note, I follow this blog- http://victoriawilguess.blogspot.com/ by Victoria Wilguess. She has suffered from Lyme Disease also. Like me she went several years without an answer or any treatments. Another thing that hit close to home was that she was also a teenager when she got sick. This is harder than most people can understand, unless you have been in the situation personally.
True friends to support you and family members to understand you can be scarce. That alone can bring someone down, on top of that she was a teenager. That is a stressful time for everyone at some point. She somehow stayed positive. I believe its because of her faith in God. I know that's what she will tell you.
Victoria has been going through some new treatments lately. Included a stem cell transplant, that she will have to go to Germany for.
Having a chronic illness is hard. There is uncertainty, pain, and a distancing from the reality previously known.
Victoria (and myself) had to grow up, just to learn to cope. This is not easy for kids who were used to running around and playing games. You cant explain to another 12 year old your sitting out of tag because your tired or in pain.
Victoria has been on my mind and in my prayers the past few weeks. It would be great if you could keep her in your prayers, she is going through a lot :)
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