Saturday, October 31, 2015

The Healing Code, have you read it?



     Today I want to talk about a book to nearly everyone I know. Dr. L recommended this to me a few years, and I am so glad I listened! This book really helped me get through the emotional trauma caused by being sick. People with chronic illnesses often have had some kind of emotional trauma at some point in their life.

     Mine stemmed from a few points. When I broke my arm I was in a cast for about 9 weeks. My thumb and pointer finger were unable to flex because the nerve was stretched. All of my fingers on that hand were messed up in some way or another. I had 0 feeling in my pointer and thumb, my middle finger had pins and needles and diminished flexibility, my ring finger was like my middle but less severe, then my pinky was unaffected somehow. Even today I still have diminished feeling in that hand after nearly 5 years, PE, and laser therapy.
Another thing that gets to me, especially on the bad days, is losing friends and being unable to stay involved with things I did previously.
At one point I was active in Boy Scouts, gymnastics, tennis, and anything else fun that came up. The boy scouts especially ticked me off. I was one of the highest ranking kids in the county, active in the Troop, first one in my patrol to reach the rank of eagle at 14 years old, and I had known most of the other guys most of my life.
I went to the meetings and taught the younger kids every week, never missed. I knew all of the younger kids, I enjoyed teaching them. It was great.
A year after becoming an Eagle Scout I just had no more energy for extra activities. I couldn't go and teach every week. No one said anything to me. I took a three month or so break before I went back. One of the first things a patrol member of mine said to me was "Why are you here"
Warming isn't it? I could talk about the Boy Scouts a lot...but lets be honest. Its way overrated.
 I am a double silver Eagle Scout with a full sash of merit badges(I could start the second). I know this from experience. I wasn't one of the kids who let their dad take over either, I made it at 14 because I wanted  to. It was a goal I wanted to accomplish. I just had a strive to thrive.
Now Lyme disease is my priority. I have to strive to survive. Ill thrive later, God willing.

     That's the gist of my sob story. Ill probably post about it again at a later date. Ill get off my rabbit trail and go back to the book.
Emotional trauma stops healing. The mind is the control center for your whole body. If it is overwhelmed with emotions it has to deal with, its priorities are going to change from healing the body, to healing the mind. Stress kills, a stressed brain cannot function.
When we live with emotional trauma, the added physical trauma will be our downfall. Its not possible to be physically well when we are taken down from both sides.
Our heart, according to Dr. Jernigan at the Hansa Center, holds onto these emotional memories. This book, The Healing Code, goes into great detail about how our emotions and thoughts control our health. One of the doctors in the book discussed how his chronically ill patients
 wouldn't get better. The root of it wasn't the wrong pill combination, but emotions.


     Reading this book gave me more sense of self awareness. I am not controlled by the anger or unhappiness I had from becoming ill. I don't blame myself. I used to try to blame others or myself. "Maybe if I would have started complaining about my symptoms sooner I would have found a treatment sooner". Or why didn't someone else see that I felt so bad and say something.
Its important to remember, everything happens for a reason. We may not be able to see the reason, but there will be a positive outcome.

     Being sick taught me to become independent and to avoid following blindly. Whenever a doctor tells me to take something I need to know A.Why? B. What is it going to do to me. C. What are the important side affects.
Too many people take a doctors advice way too seriously. A doctor practices what he/she is taught, most of them do follow a similar script for everyone.
They have a fairly specific protocol for everyone already, for depression they have an A drug they tryout first, same goes for infections, ADD/ADHD, and other disorders.
When drug A or even herb/supplement A doesn't work, they have a backup or plan B.

     I learned to think creatively. I try to think outside the box when it goes to my own treatment. Most doctors(who treat lyme) give 1-3 abx. This will cause a herx reaction from the bacteria dying.
When a herx is coming on, we are told to detox. Detox what? There is always more than lyme bacteria to detoxify. The goal may be to remove the toxins from dead bacteria, but detoxing is so general. It will help remove anything that needs to be removed.
So what specifically is being detoxed, heavy metals, other bacteria toxins(if so which ones?), environmental toxins, pesticides, parasites?
When detoxing usually some symptoms will increase, for me brain fog usually. Which toxins coming out cause which symptoms?
Anyway, this is how I think. "Why" and "how" is what I am always asking. I no longer think, "what if I had" or "but if this-". This poisons our body.

The Healing Code taught me to check my thoughts and emotions. Letting them run wild will lead to downfall, not a better circumstance that "could have been". It was not a standard self help book, it wasn't telling me to change my life to be happy. It explained the science of cellular memories and how they affect our body.
I recommend this book to anyone who struggles with a resistant, chronic disease. It was easy to read and extremely informative.
Emotional healing should be considered in everyone with a chronic disease. Something is blocking the body from healing.

“And we know that all things work together for good to those who love God, to those who are the called according to His purpose.”‘ – Romans 8:28

Friday, October 30, 2015

Almost...

Well I wish I had better news.
Yesterday I thought I was finally out of the week long fatigue streak I had been trapped in. I thought I was out of it. Nope. Today proved that theory wrong.
I woke up at 8:00am to take Dopalift, still slept in later than I wanted and had no energy. The first two days on the DL I did have some more energy than usual, but the increased insomnia has counterweighted even the thought of that happening.

I have been nauseous and dizzy all day. I get dizzy sitting down or when I stand up. Its SO nice finally being able to sit down at the end of the day!

I also couldn't eat well. I only felt like eating an apple and drinking a  protein shake...Nothing looked appetizing and I felt sick after the apple, so I didn't eat much else.

On top of that, I was up until 5:00am for the third time. This has made my brain fog stronger than ever :/
I am skipping DL tomorrow. Ill try again EARLY sunday.

As I type I have a headache between my eyes, which is unusual for me. I don't typically get headaches...this has just been a strange day altogether..
Tomorrow is new day, even though it is 1:30 am...I guess tomorrow its tomorrow already

I did finally order off amazon. I ordered Cinchona powder, Artemisia complex, and black walnut. I have never tried cinchona, its supposed to be a strong ant-malaria. Same with the Artemisia, but it hasn't been that strong in my experience.

I feel like this post was kinda choppy...must be the brainfog I guess

Thursday, October 29, 2015

The beginning of a Good Streak?

Today was another good day! I was able to get through the day AND still have enough energy to write on this blog. I can't complain about that!

Last night was another long night. It was about 5:00am when I finally fell asleep. I took the DopaLift as soon as I woke up yesterday, I didn't think it would still be in my system after so long.
Tomorrow I think I will set an alarm to get up and take the pill. This way it helps me wake up earlier and maybe...just maybe, it could lead to me going to bed earlier.

I have been looking for homeopathies for fatigue and insomnia, has anyone used any that they would recommend?

Another short blog post, sigh. maybe I will have something to say over the weekend...

Wednesday, October 28, 2015

Today was a Good Day




I finally didn't wake up with the extra fatigue I had been experiencing :)
Maybe it was one of the new supplements, or maybe I just stepped out of the babesia flair. My vote is on the second.

I was able to get some important things accomplished as well. This was a great feeling after being down for a week. I was never able to order the cryptolepis or red root, amazon didn't have what I needed. So I think I will order some Artemisia instead. Hopefully this will prevent the next babesia flair from occurring.

 Romans 12:12- Rejoice in hope, be patient in tribulation, be constant in prayer.
Words to live by.

DopaLift Side Affects

I learned last night that supplements can have strong side affects, just like the standard drugs...
I knew they could have side affects, just its rare for me to experience any.

Yesterday was a long day, I didn't make it home until almost 7:00. I decided I would go ahead and take my new supplements from my ND visit.
According the instructions given by my ND, I should take 1 Dopalift Capsule early in the day.
7PM isn't that late right?

haha..funny story.. Dopalift contains green tea extract, a good source of caffeine.

I did not think about this when I took my 1 capsule. That was 7:00pm...at 4:30 am, wide awake and fully cognizant...I was feeling kinda stupid.
I knew better than to consume ANYTHING with caffeine that late in the day. I am a full blown, well practiced insomniac. I know not to consume caffeine. I wont even drink tea anymore unless its very early in the day.
I did finally fall asleep about 5-5:30 this morning.

Haha, well, lesson learned. Dopalift, 1 pill, as soon as I wake up. NO LATER

Tuesday, October 27, 2015

The Visit with the ND today 10/27/15

     Today was my monthly visit to the naturopath. I sat in the chair, strapped in, and talked with them about an hour. They asked me how I have been doing lately, I told them I haven't been so well the last few weeks. They looked over my info from last month, which was actually one of my better months. Nothing was really changed between this month and last month.

     He tested for all of my usual pathogens I ask for, nothing showed up. That is normal on the days I don't feel well.I suspect its because the machine cannot detect them when my immune system isn't fighting them. The machine reads the body's reaction, if the body isn't reacting, it wont be detecting. Last month everything showed up, which is unusual. Usually some things will show up one visit and others will show up on the next visit. Since I felt better than usual last month, and everything showed up, my immune system was most likely fighting more then .

     Today brucella showed up, I have never had that appear before I don't think. Brucella can certainly explain the fatigue.

     He also tested all of my supplements. Lipo C, ALA, Glutathione, Kajarin Progesterone, cal phos, ledum palustre, milk thistle,arnica Montana, and iodine. ALA, cal phos, and progesterone were the only ones that tested well. So I was advised to avoid the other supplements, especially milk thistle which I was allergic to today.

   He did have me start on a few things for my fatigue, a product called DopaLift, Five HTP thrive, and POA Phytolens (toa free cats claw). The Five HTP is for sleep, Dopalift for fatigue/brain fog, and the cats claw to replace the ledum because it tested poorly.

Well, ill report back on the results of the new supplements later!

How I was Diagnosed

     Lyme disease is a tricky organism to find. Easy to contract...but a pain in the rear to locate. The tests are insensitive, and the symptoms can be hard to narrow down. I mean really, do you know how many ailments fatigue and joint pain is associated with? Its not a small number!! Fatigue can be caused by anything, insomnia, the flu, mono, hypothyroidism, a cold, cytomegalovirus, exercise, etc.
Joint pain is not as common as fatigue. Joint is usually only associated with osteo and rheumatoid arthritis, which is lyme is misdiagnosed as often.

     PCR, Western Blot, and ELISA are the most common tests utilized for diagnosing lyme disease.
Usually a doctor will order an ELISA (enyme linked immunosorbent assay) first, according to ILADS it misses 35% of culture proven lyme disease. That's a big number to just ignore. 35 out of every 100 people are told they tested negative for lyme disease, even though they are infected.

     The western blot for lyme disease is the most favorable test in the lyme community. This test detects proteins in the blood which are measured as bands. Some of these bands are extremely specific to the lyme bacteria, here is a breakdown of each individual band meanings.
Some of these single bands can prove the presence of borrelia (band 18), while most are indirect i.e. band 41.
The western blot is so popular because it can show the level of infection. Igenix specifically shows how positive each band reacted, some are low + and some are higher +++. The more + the higher the immune response towards the band. One thing Igenix does that is unique is that they show equivocal results. Equivocal is the fine line between positive and negative, something showed up on the test but not enough to call it a for sure positive.

     The PCR (polymerase chain reaction) test is also popular. PCR is very accurate but not sensitive. The infection has to be high for it to be detected, but a positive result of this test has an almost 0% occurrence of false positives. The ELISA can have false positives (though rare) and the western blot bands can be reactive to other pathogens. The PCR is not as popular as the ELISA and WB because it is more expensive and can miss new infections.

     Personally, the only thing I ever tested positive for was rocky mountain spotted fever through Quest. I was also tested through Quest for lyme (ELISA) and ehrlichia, but they always came back negative.
When I started to do my own treatment I ordered a kit through Igenix. Those tests all returned negative for babesia, bartonella, and anaplasma. A lyme EIA was equivocal and the western blot had band 41+ (ill post the results if I can find them). The EIA could be considered positive by some LLMD's, I don't think much of it.

     One of the best methods, however, is clinical diagnosis. This is when a doctor matches your symptoms to the illness, ignoring negative test results. This is also how I diagnosed myself long before any doctor told me what I did or did not have. Most people in the Lyme community will tell you to find a doctor who is capable of a clinical diagnosis. I agree with that, no blood test is 100% accurate. Doesn't matter what its looking for, mistakes can be made.

     After the Igenix results is when I returned to the ND. The ND I go to utilizes a SCIO biofeedback device. I like this device because it detects the body's reaction to so many things at once. It will also show stresses towards pathogens. My body was stressed towards RMSF, Lyme, malaria, ebv, cmv, and some parasites. Ill be darned...something actually showed up! The malaria could be a cross react with babesia, which is a cousin to malaria. That's what I am calling it anyway.
Before this, I had received 3 consecutive negative tests for RMSF, yet it showed up as a high stress right of the bat on the machine. Imagine that, my body knew it was there, my immune system just wasn't reacting anymore.

     ND's cannot officially diagnose me with anything, only MD's and DO's are legally allowed to do that. They can advise for and against supplements, but they cannot tell me I have to do something.
So they advised me to take several supplements to bring my body back into balance. This went well, but none of my symptoms ever actually ceased.
I still go to the ND. The machine can also test reactivity to supplements (like muscle testing) and if they are causing my body stress. Since I have to treat using supplements entirely, this can be an invaluable resource. I also like to see how my stresses change from month to month. I went today in fact, that will be my next post.

I hope this post offered you some clarity towards how lyme can be tested for!