Sunday, November 13, 2016

And I'm off...

If anyone reading this post suffers from chronic disease, you will get everything im about to say. If you do not have a disease, just hold with me.

As you guys may know, learning to deal with chronic illness creates a new way of life. A patient must learn his limits, what's okay and what's just too over taxing. Here's a few examples-waking up in the morning, never open your eyes then proceed to stand up. A waiting period varying from 5 minutes to 45 minutes is needed to avoid possibly collapsing on the floor from low BP.
Thyroid hormone you see is what gives you your early morning energy first thing. Lyme disease however attacks your thyroid, making it dysfunctional. When the thyroid function dips, so will you.

Next-we've wokem up, blood pressure is now at a functioning level. We are standing up changing clothes, normal right? Well, no. Depending on the day we have joint, bone, and or muscle pain. Once clotures are changed, bodily fatigue is beginning.

And then after this processs we may want breakfast. Not always, sometimes the morning is just too blurry to eat. If we actually need to eat, something simple and small(but healthy, junk food causes it's own a symptoms) like an apple is all that is consumed. Maybe not even the whole apple depending on the day.

And that's a regular morning for someone like me. I wake up, lay there until I can get up, grab an apple, then go to work and smile.
Lately my joints rarely cause a problem, bones are fine, but muscles are tight and cold. So changing clothes is tiring to some degree.
I started stretching and exercising mildly, I have had tolerable improvement. I can't over do the exercise, been there done that. Never ends in my favor.
I started the mild exercise a three days ago I think, and today was notably harder than before to get down on the floor and expend energy.
I only do my routine for 5 minutes max.

Anyway, I think I got distracted.

Chronic illness changes what a person can do. I saw something recently, and it just triggered me.
I don't know of a better way of putting it, but it just hit me.

The post was a happy parent bragging about how amazing their kid is doing. Working and doing school am obnoxious amount of time and a 4.0gpa.
I'm sad the say the only thing I felt was depressed and sorry for myself. I feel like I have fought to the death for the energy I have to work and to get my not so great gpa.
I eat a special high nutrient diet with minimal chemicals and garbage, I have single handily kept the amazon supplements companies in business, and I have had to fight with adults since I was barely a teenager to even get recognition that I'm sick and need treatment.

I have the disease that leaves me looking almost normal and feeling like I'm physically dead.
I eat weird foods all the time and I look anorexic.

And this disease is surpassing breast cancer and HIV by longshots...
But none of us get recognized. None of us get treatment. The only people that care are the ones who have experienced it.

Thursday, November 10, 2016

Holding Together, New things Ahead

Can you believe it, I have been writhing this blog for over a year now. I want to give a quick thank you to all of my readers! This blog would be pointless if it didn't reach anyone. I started it to share my story as a way to reach out to other suffering. It has done just that, so thank you all.

Next on the agenda, we have a new president. I don't care if you like him or not, we need to be praying for our leaders. We need to pray for the guidance to bring this country back to be an economic power, we need to pray that those in leadership positions who are corrupt-are removed from power, and we need to pray that this country will be a safer place for everyone.

Me-I'm doing well, many many ups and downs with me this past month or two. I am my hoping this is a sign my body is working itself back into a corrected balance, we will see.
My email update with my doctor in KS is long due...I have a hormone and andrenal panel test to do soon, I'll see what the doctor says in my update.
Recently I have had a lot of sinus symptoms-constantly running and also coughing. I just can't seem to shake it. I've knocked it down significantly but I can't knock it out...
Also tinnitus, my ears ringing has been much worse recently. I have no idea what has thrown this out, but presumably it's sinus related.
Sleep is staying in a good place, I'm sleeping hard and waking up isn't as much of a struggle most days. I'm so happy with that. Still has room for improvement but I can survive off this.
I am still trying to get myself to exercise. This almost cold weather absolutely destroys my muscles, my hands feel almost bruised. Everything is fine when I get in the sauna, I've been trying to sauna then stretch/exercise a little. We will see how this progresses.

I guess you could say I am content with my current state. I am working and doing a school without drowning. Still plenty of improvement to make, but I can live like this,

And on another note, I am ready Suzanne Somers book Breakthrough. It's fantastic, I love how it's loaded with information from actual doctors and a patient(Suzanne) but it's written for patients. It's not crazy hard to understand because it is for the patients, I love it.
It's loaded with good information on hormones, adrenals hormones are very interesting...there are so many. No wonder adrenal fatigue can throw a person into a tailspin!

Anyway, here's my words for the week haha