Wednesday, May 30, 2018

Beginning Therapy

Therapy
Well you guys, today was the day. The day I was never intending to happen. The day that has been on my mind since last September. I have never wanted to see a therapist. I have always been afraid a therapist would tell me that all of my problems are in my head or they are my fault. The last thing I can deal with right now is someone else telling me to get my crap together and pick myself up by my bootstraps. Been there, tried that.

I think that...I am glad to say...it went well...
Today was visit number 2. Last week was intake, I met a man named Jeff who asked me questions on my medical history and explained the whole counseling process to me. Then today, I met with Jeff again. He asked me more on my medical history so I explained more to him on how I have fought with lyme and the trauma that has come about from it. We also talked about family history and my childhood. It was a lot but in a good way.
Jeff asked me a bunch of questions, ending in me talking. A lot. Today we focused the most on the initial trauma of becoming ill and how I was raised. It wasn't terribly hard to talk about like it can be. I think now that I've gotten to meet the guy I am getting more comfortable talking to him. But on the other hand today was a fairly good day, which I also mentioned to him. It just feels so strange to me to tell all of my personal life to someone who is a complete stranger. I don't even tell my friends some of this stuff and I know them...so to pour out any imagine-able detail about my life to this guy sitting in a chair with a sheet of paper...new experience to say the least....

It went well though. I felt no worse when I left than when I walked in, so it couldn't have been that bad. He didn't call me crazy or say anything offensive. I didn't really expect him too, but it is a fear of course. I don't know though, its still a peculiar environment for me. So far its just been me explaining my life to him, something tell me thats how its going to be for a while...I usually have a lot to say.
At the end of the session he asked what I was looking for in a counselor, I told him I was looking for someone who understood what it was like to be sick all the time. Someone who understands the things that healthy people don't understand.
he said they do not have anyone who specializes in sickness or anyone particular he thought was exactly what I was looking for, so he offered to be my therapist. Of course I said yes, so we will see how things go with my new therapist Jeff. I do have the freedom to request a new counselor at any point, that makes me feel more comfortable just in case something happens.

The Mental Breakdown
So that was my day today. Today and the last several days have not been too bad....last Friday though-not so great.
Last week was a tad rough at work. I didn't think it was all that bad until I reached the end of the week and I realized something, I felt like death. I wasn't functioning well at work at all. One of the people I was working with even looked over and asked me if I was alright. On bad days I try my best to hide how I feel at work, I don't want anyone to worry about me or think Im complaining. When someone notices Im not myself, I know I have reached the point of feeling much worse than I even realize.
Friday that held true. The further through the day I crawled the less I wanted to do anything. Friday evening came around and I just started to loose it. Physically I was feeling just mildly sick, mentally I shattered. I had friends over (thats all I remember, I don't remember what friends or what we did) at my house, I was barely present for that. When they left I made it to the shower and just bawled my eyes out. My brain was racing with negative thoughts. I couldn't think of anything that made me happy. It didn't matter what crossed my mind it caused me upset and frustration. I didn't know who to turn to, in fact this time I don't think i turned to anyone. I just took some medication and turned on some music. That was all I felt like doing....I hate feeling like that. On the nights that I feel entirely worthless and a waste of space I feel like I undo every bit of positive thinking and a happy moments that I have struggled to create.
I keep telling myself that I or someone will find a solution to help me feel human again. I want to be me all the time, not just sometime or on rare occasions.
Im blaming work stress for breaking my mind to shards this time. This week at work I decided to take a new approach, the "I don't care because I can quit at any time" approach. Maybe its working.
Today I have without a doubt a couple of things running through my mind that have distracted me from feeling like myself. Its not severe..I just hope it stays that way.
My summer class starts tomorrow, I hope its easy enough to not stress me out but hard enough to keep my mind on track.

Until next time...

Saturday, May 26, 2018

My Own Little Corner

This weekend has been rocky and it isn't even over yet. My brain has been scrambled eggs. I spent last night feeling OCD and depressed. I cried in the shower because I didn't know what else to do. I still don't know what to do. My brain wants to keep upsetting thoughts in circulation and important thoughts forgotten. The sadness and loneliness was unbearable.
I started the intake process with the school councilor last week. I go back this week for something, I think i get placed with a councilor. Im not entirely sure how it works, I just know I have to go back.
Getting the process started was so uncomfortable to me, I had to explain to the intake councilor about lyme disease and why it causes me such hassles. I used to not mind sharing my story but with how I feel these days I feel like so...sick of sharing. It feels like my business, not someone elses. But I did it, nothing bad came of it. He didn't try to tell me anything about lyme, he did of course bring up the CD C and wondered why they didn't do anything about it. I didn't entirely appreciate how he asked me about it, im the patient not the doctor. Why on earth would I honestly care about the CDC, I have a long list of complaints about the CDC but lets be real, the CDC recognizes the Flu, HIV, Tuberculosis, and a ton of other diseases but can a person with HIV be cured? No. Would I ask a person with HIV about the CDC not being able to treat them? No, it probably get looked at like I had lost my marbles.
But its fine. Ive made it this far. I keep telling myself that its time to seek professional help, I have lost so much enjoyment in life that I know I would have if I could just think straight. At this point Ill even try anti depressants and/or anxiety medication, not long ago I would have said I would never take those meds unless it was an emergency. But its time. I think anxiety is part of the reason my eating has been so bizarre and why I never feel like eating. I think depression and OCD are why I can't enjoy anything and why I never feel like anything is good enough. Its gotta change.
Lately I have not been feeling that bad at all-if I discount my emotional turmoil. I have had some back pain, other than that I haven't been hurting much. Fatigue has been significant but because of the OCD and things I haven't been able to sleep...the last two nights, with the help of meds, I have been able to sleep deeper. Today I have for sure had more energy.
Heart and blood pressure symptoms have been an issue, they are probably the only ones I have that aren't related to anxiety or depression related. They could be indirectly though. I just know that if my mood was stabilized and normalized I would probably be feeling great right now, or even more often.
It is hard for me to go the councilor route though, I don't bond with just anyone, I don't feel comfortable speaking to just anyone, and my brain fog will keep me from being able to speak my thoughts clearly. I am going to try to push through it. Currently the only people who know I am trying to pursue this is you guys that have found this blog online, two friends, and my mom. Thats it, I don't think ill change that anytime soon either.

Last night something really triggered me. I was speaking to my best friend and he told me he probably won't be able to go with me to Kansas again this year. I am trying to go back to the clinic in either August or December, so theres time to plan out ahead. Or so i thought. I don't want to keep going through treatment alone like I am. I want and need a friend with me. It takes a lot out of me by sitting in a hotel room listening to the world around me go round while I watch some tv show that I don't enjoy. It makes me feel so small and worthless knowing my friends and family are at home living their life, making money at work, hanging out with other people, and all I can do is keep the hotel bed planted on the floor.
I hate it. It made me feel a billion times better having my best friend with me last visit. I wasn't uncomfortable and I didn't feel so alienated from the living world. I had a friend with me, someone there just for me to see that I was okay. I was much more stable and well feeling having him with me....
I don't want to go back to my doctor at all if its just going to be me staring down the four walls between clinic visits.
I don't even have the energy to go off and go walking or anything after seeing the doctor usually, otherwise I would try to find things to do but its just not that easy....

Its hard for me to find encouragement. Its hard for me to get out of my own head. Its hard for me to trust anyone. Its hard to feel the love from those around me. Its hard to enjoy anything. Day to day activities have just become a distraction between sleeping.

I sure hope that hamster is enjoying its vacation from the wheel....

Saturday, May 19, 2018

Endo Update

So sorry for my delay in posting my endoscopy results. I know I left you on a cliffhanger with the potential of cancer (once again).
I realized something, this was the second time in six months I was told I may have cancer. Good news is I am cancer negative. Bad news is we still have no explanation as to what is wrong with me. I wish I couldn't say this, but I wish they had found a stomach tumor. I so so wish that the doctor had gone down into my stomach with his scope and found a huge tumor. Then I would finally have a reason for all the issues I have been having. I would have a justification.
If it would have been cancerous then my friends and family would finally take me serious. The C word is a magical word for creating kinds and compassion in people. People will go out of their way to show how much they care. Instead I was told I have a little pre-ulcer, H.Pylori and celiac biopsies were negative. The doc didn't say if this pre ulcer could be causing all of my issues. As of today Ill be taking omeprazole twice daily, against my wishes but if it works....ill be a happy camper.

Its been so frustrating. So frustrating. I have no idea what path I need to pursue. Im tired of feeling dramatic and Im tired of feeling like i am starving. I want to look at food and think good things, not gag before I ever even take a bite.

I had a nice week the week before last. My family and I went out of town, away from all forms of communication and into the land of buffets and weight gain.
I ate whatever I wanted, I decided to not worry about it. I was fine (more less, not normal but miles better than before). I ate all sorts of junk food, no worries. I ate healthy food, again no worries. I drank things besides water like lemonade, fine.
I burped a lot, water even makes me burp. But other than that no stomach pain of any significance.
I couldn't believe it, but I was extremely grateful. When I got home I weighed myself, no weight gained. Oh well I thought.
I figured maybe the de-stressing allowed my body to get out of fight or flight mode and relax, plus i was taking sucralfate so i thought maybe it was finally kicking in.

A few days after getting home everything returned, it hasn't reached the severity it was at before the trip but the potential is there. I don't get it. I wasn't stressed. I have nothing to be stressed about, work has been great, school is out, all is well at home. I don't know what could be causing the stress.

I did have some stressful things happen this weekend which did make it worse, but my issues had already started coming back long before anything stressful happened.

So here I am. Frustrated, me and my pre ulcer. I don't know what ill do next. I have no idea what I even want to do, I keep pushing myself to see the school therapist. Maybe this week will be the week I can get myself to do that.