Campus Tour

 I Toured my Soon to be College Campus!

This morning was amazing! My mom and I went and toured my soon to be college, I will start in April. I was able to meet people and see the classrooms and apartments. It was great! The people on campus, staff and students were the nicest people. They all told their story briefly, and everyone of them had a story. The college, being a chiropractic school, is multinational big time. One of our guides was from Puerto Rico and another was from Berlin, Germany. One was raised by a chiropractor, the other had a neck injury when he was a teenager and was inspired when he was healed by a chiro. In Germany, he said there are only around 120 chiropractors for the whole country-so not very many at all. I bet theres that many within 75 miles of me LOL. 

I felt like I was around other people who got it, people who are living with a purpose and dedicated to helping others. All of the teachers on campus are either DC, MD, PHD or a combination. One teacher that toured us around was from Egypt, he was both an MD and DC. He did not entirely give his story, but he seemed very fascinated by people. 

One of our tour guides, we were her last tour before she graduates, she had a back injury when she was a teenager and took the medical route. It didn't work for her and she was miserable, she lived with her issues for a long time but when she reached her early 30's she decided to go back to school and ended up at this one. She told my mom and I how she was pushed into it all, by God, how it all just landed into place and how she ended up in the chiropractic field. Pretty much all of the students who spoke said similar, they felt that this is where they were supposed to be and it was not an accident. Imagine being around that many like minded people who all believe that they are actually serving a purpose, rather than living aimless!

Talking to this tour guid though, she almost made me cry. When I told her my story, and I was only able to share a fraction of it with her, all she said was "oh my God" and she got it. She could see all I had been through and didn't question it. And she said to me "you keep sharing your story and never stop. Remember your why. Share your story often, it will mean so much.".

I have never felt like this before, but I felt like someone put such a strong value on my purpose to help others. No one tried to critique it, question it or tell me there was something wrong. I always shy away from sharing my story too much, I don't want to over share or make it seem like I have been through more than the next person. I never want to let someone feel bellow me because their story is different from mine. But this lady made sure to show me, that I am adding a value rather than substituting someone else out. How often do you hear a doctor, not talking over or trying to explain why they are right and you are wrong?? The first thing that comes to my mind when I hear "doctor" is someone who is smart but not wise, someone who tends to be snotty and a bit holier than thou. I did not get that feeling at all with any of these people today. 

This was a way different feeling from my undergraduate, the whole campus. It was a lot cleaner, a lot friendlier, a bit smaller. It will be another hard journey, making it through and passing all the boards, but I can do it. I have to do it. The environment will be much more positive than my undergrad though, because the nice thing about grad school is that most everyone that is there, wants to be there. It is more than just a means to an end, its a foundational beginning. 

How I was Diagnosed

     Lyme disease is a tricky organism to find. Easy to contract...but a pain in the rear to locate. The tests are insensitive, and the symptoms can be hard to narrow down. I mean really, do you know how many ailments fatigue and joint pain is associated with? Its not a small number!! Fatigue can be caused by anything, insomnia, the flu, mono, hypothyroidism, a cold, cytomegalovirus, exercise, etc.
Joint pain is not as common as fatigue. Joint is usually only associated with osteo and rheumatoid arthritis, which is lyme is misdiagnosed as often.

     PCR, Western Blot, and ELISA are the most common tests utilized for diagnosing lyme disease.
Usually a doctor will order an ELISA (enyme linked immunosorbent assay) first, according to ILADS it misses 35% of culture proven lyme disease. That's a big number to just ignore. 35 out of every 100 people are told they tested negative for lyme disease, even though they are infected.

     The western blot for lyme disease is the most favorable test in the lyme community. This test detects proteins in the blood which are measured as bands. Some of these bands are extremely specific to the lyme bacteria, here is a breakdown of each individual band meanings.
Some of these single bands can prove the presence of borrelia (band 18), while most are indirect i.e. band 41.
The western blot is so popular because it can show the level of infection. Igenix specifically shows how positive each band reacted, some are low + and some are higher +++. The more + the higher the immune response towards the band. One thing Igenix does that is unique is that they show equivocal results. Equivocal is the fine line between positive and negative, something showed up on the test but not enough to call it a for sure positive.

     The PCR (polymerase chain reaction) test is also popular. PCR is very accurate but not sensitive. The infection has to be high for it to be detected, but a positive result of this test has an almost 0% occurrence of false positives. The ELISA can have false positives (though rare) and the western blot bands can be reactive to other pathogens. The PCR is not as popular as the ELISA and WB because it is more expensive and can miss new infections.

     Personally, the only thing I ever tested positive for was rocky mountain spotted fever through Quest. I was also tested through Quest for lyme (ELISA) and ehrlichia, but they always came back negative.
When I started to do my own treatment I ordered a kit through Igenix. Those tests all returned negative for babesia, bartonella, and anaplasma. A lyme EIA was equivocal and the western blot had band 41+ (ill post the results if I can find them). The EIA could be considered positive by some LLMD's, I don't think much of it.

     One of the best methods, however, is clinical diagnosis. This is when a doctor matches your symptoms to the illness, ignoring negative test results. This is also how I diagnosed myself long before any doctor told me what I did or did not have. Most people in the Lyme community will tell you to find a doctor who is capable of a clinical diagnosis. I agree with that, no blood test is 100% accurate. Doesn't matter what its looking for, mistakes can be made.

     After the Igenix results is when I returned to the ND. The ND I go to utilizes a SCIO biofeedback device. I like this device because it detects the body's reaction to so many things at once. It will also show stresses towards pathogens. My body was stressed towards RMSF, Lyme, malaria, ebv, cmv, and some parasites. Ill be darned...something actually showed up! The malaria could be a cross react with babesia, which is a cousin to malaria. That's what I am calling it anyway.
Before this, I had received 3 consecutive negative tests for RMSF, yet it showed up as a high stress right of the bat on the machine. Imagine that, my body knew it was there, my immune system just wasn't reacting anymore.

     ND's cannot officially diagnose me with anything, only MD's and DO's are legally allowed to do that. They can advise for and against supplements, but they cannot tell me I have to do something.
So they advised me to take several supplements to bring my body back into balance. This went well, but none of my symptoms ever actually ceased.
I still go to the ND. The machine can also test reactivity to supplements (like muscle testing) and if they are causing my body stress. Since I have to treat using supplements entirely, this can be an invaluable resource. I also like to see how my stresses change from month to month. I went today in fact, that will be my next post.

I hope this post offered you some clarity towards how lyme can be tested for!