Next Round of Fighting

Lots of things have happened since my last post. First, my memory has been all over the place, for one September is almost over...my last post was August 30...and I thought that was last Sunday or maybe the weekend before. In reality it was actually three weeks ago.

Second, my stomach has been severely messed up. Last Tuesday I went into work to do some things, I was very sick and unwell that day, I spoke to another co worker there. She said You have a hell of a hernia thats what you have!
I hadn't been able to eat anything significant in several days and couldn't even drink water much, I was down to 129lbs which I haven't seen and haven't wanted to see in a long time.
So I saw my chiropractor that day and she put her hand on my stomach..she said oh my goodness, this must be one of the smallest stomachs I have ever felt. After that she said, without even pressing down I feel the artery pulsing, this is serious you need to start eating again and gain some weight back. She wasn't wrong either, I feel sickly thin...like a starvation malnourished thin.
Sure enough though, hiatal hernia. She adjusted it and man did that hurt! I saw my friend later that day, she's trained in some kinesiology. So she could do some muscle testing to see what else she could find with this whole abdominal situation. She did some things on my illeoceacal and houston valve. Plus she did something for my whole emotional ordeal, color balancing I believe its called.

During the color balancing she found that I was grieving over school, so we dug deeper to see the specifics. Long story short, I was grieving over having enough money to pay for school soon. But heres the catch, my school is cheap and its not bugging me...so I asked my friend, could this be for someone else? She said yes. Then I knew, it was about my best friend. I do not want him to go off to school this coming school year next year....if he saves enough pennies and gets the money he's going to school a thousand miles from me...I don't want that. Not one darn bit. He is the one person in my life that is health and he gets it. A healthy person who understands what I'm going through? Holy crap thats rare. He understands how important it is for me to talk about some of these issues that come up with me and he does the best he can to be there for me. He did that when I was healthy a few months ago too, we just have that sort of connection you could say.
I know I've lost my mind and my body for now...badly...but I can't imagine him being gone from me or wanting to be gone like that, ya know? I just don't get how he would want to go so far away when he doesn't have a need for it...but school is one of those things I just don't get like the normal people do...being sick, I just show up and do the work then leave..dont get me wrong, I have good grades and do well in school. But I have no excess energy to spend on it.

Anyway, back to my kinesiology friend. We finished out that day cleaning out my emotions, I went home feeling a bit lighter and able to eat. I had some progress for the first time since I last visited kansas. It didn't stick though. The next day, I was able to eat better than previous but not well. Emotions hadn't come back full blown but they were sliding.
That thursday my chiropractor told me to come for a visit(yep, she texted me and said to come see her. She's just that cool). She rechecked my stomach, out again. She adjusted it, this time much less painful and I could feel it release. My eating improved for several days after this.
She also checked me on her little oil biofeedback device, it gives out a reading on essential oils that will be beneficial for my body. Several relaxation oils plus a few for digestion were my results. Since then I've been keeping up with using my oils, seems to be slightly relaxing if anything. I smell good too, like a whole flower shop exploded.

This week I've seen my chiropractor again, for my stomach to be adjusted. I saw my friend yesterday and she did some more digging on me. Some kind of school stress related to me came up, we couldn't figure out anything deeper than that though. We cleared it, that was the only emotional situation for me this time, very much improved after the visit. I also started my supplements back, last week when I couldn't eat or drink i quite everything except for a few important things.

The week before last my ND here told me it could be h.pylori, so I started Mastic Gum. That has helped my stomach upset and it was effective quickly, still taking for now. I don't think I have h.pylori...I think its all been the hernia. Either way I'm taking mastic gum and a natural antibiotic called biocidin to clear any candida or other nasties from my digestion. Plus a super strong probiotic.

All of this, catches y'all up until today.

Today I spoke to a lyme friend I haven't seen in a long while. She's starting with a new llmd that is super well liked and way up in the food chain. After telling her about all my psych symptoms that I cared to share plus my physical, she said I think you've got a bartonella infection brewing that needs addressing.
She did a quick muscle test on me and told me yes its bart, however no babesia this time. I figure if anything it'll be worth talking to my kansas doctor about when I see him.
Im going back the week after next for a short visit, by that I mean an emergency visit for him to work on me.
Speaking to my friend was great, it was nice to talk to someone whose as well lyme educated as I am. Except she's not so much in brain fog as I am right now, so it was much easier for her to take a shot as to what could be causing my new found symptoms. When she said bartonella, i remembered back when i took houtynnia several years ago and had a brain herx, which gave me a severe brain herx.
Since then, sometime last year, I had my KS dr. check me for bart, to which i was negative. But i wasn't having these symptoms then...so, maybe we've reached a new layer of junk in my system to remove.
I don't currently feel toxic, I feel like it is more pathogenic...I do the ionic foot bath and some other stuff...I should be pulling out a significant amount of toxins. Idk how its even possible that I still have toxins in me at this point, but whatever.
Ill keep on working.

Past Treatments and a lot of Pills!

As you know, I have been treating my Lyme disease and co-infections for a few years. In my last post I said I was going to list all of my past, today is the day!
Most of the bottles I saved are herbs/supplements, but I have a few prescriptions like nystatin and doxycycline. Here it goes, its long...

For chelation-
3 bottles of Total Chelate by nutriwest, Started March 2015, 1 pill 3x daily, worked up to 2 pills 2x daily
2 bottles of DMSA Synergy from GS nutrients, 100mg 1 pill once daily, 3 days on 11 off(Doctors protocol)
2 bottles of King Chlorella from Nutricology, 10 pills spread throughout the day
2 bottles of DMSA from living supplements, followed the Cutler protocol, first bottle was 12.5mg, 1 pill every 4 hours, 3 days on, 4 off. I started this June 12, 2015, finished midnight September 5, 2015
A total of 560 pills

Probiotics-
Culturelle while I was taking Doxy, 1-2 daily, 180 pills
3 bottles of Body Biotics SBO's, I started at 1 two times a day, ended with 2-3 twice a day, started early 2015, finished May 24
Bowtrol Probiotics, 1 bottles, 2 daily, September 2015
2 Bottles Innate Flora 20-14, 2 per day(IIRC)
1 bottle NOW Probiotic-10,1 3x daily
1 bottle Biotics research S.Boulardii 2 daily
1 bottle Colon Plus also biotics 1tsp daily
=710 pills, not counting powder
I know a few of these are missing, I took more culturelle, another probiotic from Natures Sunshine, and at least 1 other. Plus I consume goat kefir and yogurt often(not pasteurized), but those don't count here

Vitamins-
Vitamin K2 from NOW, 4 bottles(from memory, only saved two), 600mcg daily, started early 2015, finished in June.
B-Complex, 1 daily, Metabolic Maintenance 1 Bottle, Started around August 2015, ended October 2015
5-MTHF Metabolic Maintenance, 1 bottle, 1 pill a day. Started with B-Complex, 2 bottles
Active B12 Folate, Prothera 1 pill a day, 3 bottles, started with Doxycycline
2 Bottles of Esther C, doses varied the ND had me doing 10g at one point, end of 2014/beginning of 2015
Active MTHF Complementary Prescriptions, 3 bottles, 1 pill a day.
1 bottle of Liposomal vitamin C, 3 pills a day, started in Oct.2015
1 bottle of CoQ10 from Metabolic Maintenance, 1 pill a day, Started with B-Comp.
2 bottles of Lithium Orotate. 1 bottle from Swanson and 1 from Advanced Research, 1 5mg pill a day, started after 1st hair test.
Custom Multivitamin Powder from Metabolic Maintenance, 1.5 tsp per day, 1 bottle, Started end of January 2015
3 bottles of NOW vitamin D-3, 10,000 IU per day, Started with K2
Calm Magnesium powder, 2 tsp per day, started with doxy, I only saved 2 bottles but I have continuously taken it since Aug.2013. I am going to estimate 6 bottles.
1 bottle of Green pastures Blue Ice Cod liver/butter oil, 8 per day, same as K2
There is definitely more, this is just what I coudld remember plus what I saved.
=2,350 pills not counting magnesium and vitamin powder!

Herbs(another big category!)
Grapefruit seed extract, nutribiotics, 3 per day(IIRC), 2 bottles
1 bottle of Swanson Grapefruit seed extract liquid, both of these were spring 2015
4 bottles of Swanson Milk thistle, 2 pills 3x daily, Started June 5, stopped end of Oct 2015
3 bottles of NOW Eleuthero capsules, 3 pills 3x daily, same as grapefruit seed extract
13 bottles of Swanson Andrographis Paniculata, 3 pills 3x daily, I started this early 2015
1 bottle of NOW Andrographis, same dose
2 bottles of Natures Sunshine Black Walnut, bottle one Aug., b.2 October 2015
2 bottles Artemisia Combinations, started 8/20 ended 9/5, 2015 B. 2 same as b2 black walnut
3 bottles of NOW Cats Claw, 3 pills 3 times a day, same as andrographis
2 bottles POA Phytolens, 2 pills 2x daily, 2015

2 bottles NOW black walnut/wormwood complex tincture, Feb. 2014
10bottles cryptolepis tincture from Montana Farmacy, first dose 15 drops, ended at 1/2 tsp 3x daily, started May , ended August. 2015
3 bottles Alchornea Cordifolia, 1/4 tsp, June-July 2015
1 bottles Sida Acuta 1/4 tsp, August-Sept.1
1 bottle Houttuynia tincture, Montana Farmacy, 1/4 tsp, June-July 2015
1 bottle Nutramedix Cumanda, started June 5
1 bottle Nutramedix Quina, started June 5
1 bottle Nutramedix Pinella started May 15
1 bottle Nutramedix Burbur started May 15

3 bottles of Biocidin from Bio Botanical Research, started around December 2014
2 bottles of Humaworm, bottle 1 January 2015, b.2 May 2015
1 bag of Houttuynia powder, I started at 1/4tsp and worked up to 1 tsp 3x daily, finished in Sept.15'

=2,270 pills, not counting liquids
This isn't counting the herbs I took first round with the ND for candida.

Other Misc. from the ND

Nutriwest-
1 bottle L-Glutamine
2 bottles methyl renew
2 bottles Total Cort
4 bottles DSF herbal
=630 pills

Metabolic Maintenance-
3 bottles Melatonin 9mg at night
3 bottles of L-Theanine
= 780

NOW-
2 bottles L-Ornithine 6 pills daily
1 bottle L-Theanine
2 bottles L-Arginine/Ornithine combo, 6 pills daily, 1 bottle 2014, 1 2015
=860 pills

Wellbrain-
2 bottles Adrestore
2 bottles Dopalift
=480 pills
1 bottle of Immuno gG from biotics research(idk when I took this, it was 2012)
2 bottles Sleep Deep from Dancing Willows, 2014
1 bottle Adrena Calm by Apex Energetics
= 100 pills

Other Misc.
4 bottles of Nystatin pills, 2 pills 2x per day
2-3 bottles Argentyn 23, 1 tsp 5x, 2014
Odorless garlic, 1,000 mg, 2014
4-5 Bottles Doxycycline, 4 liquid 1 pills, 100mg 2 times daily
= 580 pills

Homeopathics
4 bottles Ledum Palustre 30C. 5 pills 3x daily
1 bottle Boiron Silicea 30C
1 bottle Arnica Montana 30C
1 Bottle Calc.Phos. 6x
1 bottle Ruta Graveolens
1 bottle Calc.Phos 30X
2 bottles Mediral Rocky Mountain Spotted fever
1 bottle Physica Relax Milieu
=880 pills

This comes to a total of 9,160 pills!!! Except for 3 bottles(Artemisia, 5MTHF, and Dopalift), I didn't count anything I am taking currently. I didn't even count the liquids which includes the doxy and cryptolepis.
Almost 10,000 pills and I am still sick! This is just wrong. Most of these were in the last 1.5 years. What the heck.

 

I know some things aren't even included, like Dr.L had me take 3 rounds of mebendazole, 2 weeks each, and 2 rounds biltricide. IV drugs aren't counted. Essential oils weren't counted. And a few other miscellaneous things weren't counted. All of these have also been significant in my treatments.

Looking back, only a few of these were helpful. The cryptolepis tincture, DMSA, Ledum, and IV drugs made anything lasting. Houttuynia was also helpful, it was definitely killing something, I started at 1/4 tsp once a day and it made me feel horrible. I felt like I was going crazy. I would get this spacey feeling, I would become depressed at night, and I couldn't focus. It was one of the worst herxes I have ever had. The sad part is, idk if it gave me any lasting effects. It is traditionally used for Bartonella, which I have never been positive for. I decided to try it to see if bart would start showing up positive at the ND. Babesia never showed up until I started taking cryptolepis, I started taking it and I started testing positive on the bio machine. I thought the houttuynia would do the same for bart if I have it.


The ND has tried to push several of these products on me, especially several of the vitamins and Nutriwest. They are fine products, but they aren't what I need. What I need is to strengthen my body and get my body to kill the bacteria.
The probiotics definitely helped my stomach and candida. Before I tried the modified GAPS diet I had extremely high serotonin, which is made in the gut. After the diet and probiotics, its now too low actually. All of my neurotransmitters are low now. I will be making a post about this in the future. I just have to figure out....where did I put those test results...

In my next post I am going to highlight my current protocol and possible changes.

I wanted to right more...but it took about two hours to type all of this out.
 I.am.toast.